Results 71 to 80 of about 582,229 (358)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee   +9 more
wiley   +1 more source

Valery Bryusov in S.M. Soloviev’s Memoirs [PDF]

open access: yesЛитературный факт
For the first time, the article presents a memoir essay about V.Ya. Bryusov, written shortly after the poet’s death by his friend, the symbolist of the younger generation S.M. Solovyov.
Alexander L. Sobolev
doaj   +1 more source

William Maginn and the Denial of Authorship: The text of the Colby Lecture at the Annual Meeting of the Research Society for Victorian Periodicals, University of Delaware, 2014 [PDF]

open access: yes, 2014
This the text of a plenary lecture given in 2014 after being named co-winner of the Robert and Vineta Colby Scholarly Book Prize from the Research Society for Victorian Periodicals.
Latane, David E
core   +1 more source

Irregular marriage: myth and reality [PDF]

open access: yes, 2013
This article examines the historiography, the law, and the practice of irregular marriage in Britain. It argues that there has been a confusion of terms in the historiography of irregular marriage that has served to obscure its meaning, pattern, and ...
Gordon, Eleanor
core   +1 more source

Feasibility and Preliminary Efficacy of Integrative Neuromuscular Training for Childhood Cancer Survivors: A Pilot Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Survivors of childhood acute lymphoblastic leukemia (ALL) often exhibit early deficits in muscle and movement competence, which can compromise long‐term health. Integrative neuromuscular training (INT), a multifaceted approach combining fundamental movement activities with strength exercises, may help address these deficits during ...
Anna Maria Markarian   +7 more
wiley   +1 more source

Joining forces: European periodical studies as a new research field [PDF]

open access: yes, 2016
In recent decades, periodical studies have burgeoned into a vibrant field of research. Increasing numbers of scholars working in disciplines across the humanities — literary studies, history, art history, gender studies, media studies, legal history, to ...
Ewins, Kristin   +3 more
core   +3 more sources

The Role of Invasive Procedures in the Treatment of Complicated Gastrointestinal Graft‐Versus‐Host Disease in Pediatric Patients

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Gastrointestinal graft‐versus‐host disease (GI GVHD) following hematopoietic stem cell transplant is typically managed with medical therapy, but surgery and angioembolization may be warranted in selected cases with life‐threatening complications.
Gaia Brunetti   +12 more
wiley   +1 more source

Reflections on the future of research curation and research reproducibility [PDF]

open access: yes, 2018
In the years since the launch of the World Wide Web in 1993, there have been profoundly transformative changes to the entire concept of publishing—exceeding all the previous combined technical advances of the centuries following the introduction of ...
Baillieul, John   +2 more
core   +2 more sources

Blinatumomab Utilization in Pediatric B‐Cell Acute Lymphoblastic Leukemia: Experience From the Mountain West

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Blinatumomab is a bispecific T‐cell engager approved for the treatment of pediatric B‐cell acute lymphoblastic leukemia (B‐ALL). Outpatient home infusion reduces hospitalization burden and optimizes resource utilization, but is logistically challenging.
Angela Parra del Riego   +10 more
wiley   +1 more source

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