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Siblings of children with palliative care needs often suffer feelings of being neglected, and their needs for information and involvement are frequently unmet.
Ulrika Kreicbergs +3 more
doaj +1 more source
Background Despite the high potential to improve the quality of life of patients and families, palliative care services face significant obstacles to their use.
Marco Bennardi +6 more
doaj +1 more source
Background The assessment and evaluation of practical and sustainable development of health care has become a major focus of investigation in health services research.
Febe Friberg +8 more
doaj +1 more source
Wake up, wake up! It's me! It's my life! patient narratives on person-centeredness in the integrated care context: a qualitative study [PDF]
Person-centered care emphasizes a holistic, humanistic approach that puts patients first, at the center of medical care. Person-centeredness is also considered a core element of integrated care.
A Aboulghate +59 more
core +3 more sources
Background One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting. Previous studies show many difficulties and shortcomings in the care of patients with palliative care needs in ...
Pia Hahne +4 more
doaj +1 more source
Development and psychometric evaluation of an observational coding system measuring person-centred care in spouses of people with dementia [PDF]
YesBackground: The notion of person-centered care has been important in investigating relationships between people with dementia and paid carers, and measures are available to assess this.
Brooker +12 more
core +1 more source
Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care [PDF]
To support person-centered, residential long-term care internationally, a consortium of researchers in medicine, nursing, behavioral, and social sciences from 21 geographically and economically diverse countries have launched the WE-THRIVE consortium to ...
Anderson, R.A. +15 more
core +2 more sources
The Implementation of the NDIS: Who Wins, Who Loses? [PDF]
The National Disability Insurance Scheme (NDIS) is a major paradigm shift in funding and support for people with disability in Australia. It is a person centered model that has at its core a change in government funding away from service providers direct
Green, Jenny, Mears, Jane
core +5 more sources
Background The COVID-19 pandemic greatly impacted primary care and cancer care. We studied how primary care utilization in Ontario, Canada changed for patients who were newly diagnosed with cancer just prior to the COVID-19 pandemic compared to those ...
Ying Ling +7 more
doaj +1 more source
Person centred dementia care: problems and possibilities [PDF]
Purpose Dementia care is an issue of increasing policy focus, with person centred approaches becoming synonymous with quality provision in this area. However, the implementation and efficacy of this approach is difficult to measure and there are still
Argyle, Elaine
core +2 more sources

