Results 31 to 40 of about 2,022,801 (265)
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu +8 more
wiley +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker +11 more
wiley +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Central nervous system (CNS) involvement in childhood acute lymphoblastic leukemia (ALL) is assessed by cell counting and cytomorphology from cerebrospinal fluid (CSF) and is used for treatment stratification worldwide. The ratio of “CNS2” patients in clinical trials ranges from 3% to 40%, with unclear prognostic significance ...
Laura Almási +14 more
wiley +1 more source
Protecting patient privacy in tabular synthetic health data: a regulatory perspective
npj Digital MedicineSynthetic tabular data generation (SDG) is increasingly important in healthcare research and innovation while preserving patients’ privacy. However, ethical concerns remain, primarily over residual privacy vulnerability and insufficient oversight.
Lisa Pilgram +3 more
doaj +1 more source
Biometric data as a tool for remote personal identification
RUDN Journal of LawThe article examines biometric data as a tool for remote identification. Biometric data, including voice recording, fingerprints, retinal scans, and otheridentities, hold special significance because they enable the accurate establishment of a person's ...
Dmitry S. Zaporozhtsev
doaj +1 more source
Supporting Survivor‐Centered Care Through Digital Health Integration
Pediatric Blood &Cancer, EarlyView.ABSTRACT Survivors of childhood cancer face barriers to receiving guideline‐based, long‐term follow‐up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing.
Jordan G. Marchak +15 more
wiley +1 more source
PROTECTION OF PERSONAL DATA FROM CYBER THREATS
International Journal of Law in Changing WorldPersonal data has become a valuable business resource but is increasingly targeted by cyberattacks and leaks. This study uses comparative legal analysis and formal legal methods to examine how citizens' data rights can be better protected in the digital
Elizaveta Zainutdinova
doaj +1 more source
Pricing Personal Data Based on Data Provenance
Applied Sciences, 2019 Data have become an important asset. Mining the value contained in personal data, making personal data an exchangeable commodity, has become a hot spot of industry research.
Yuncheng Shen +6 more
doaj +1 more source
Survey of Personal Incomes, 2009-2010: Public Use Tape
, 2012 copyright UK Data Service and data collection copyright owner.The Survey of Personal Incomes (SPI) is based on information held by HM Revenue and Customs tax offices on individuals who could be liable to UK income tax.
HM Revenue and Customs, KAI Data, Policy and Co-Ordination
core +1 more source
Therapeutic Apheresis and Dialysis, EarlyView.ABSTRACT Introduction Bloodstream infections due to repeated vascular access (VA) puncture and circuit connections remain major concerns in hemodialysis. Therefore, we examined current practices for glove, disinfectant, and personal protective equipment (PPE) use according to VA type in national university hospitals in Japan.
Aiko Yamada +6 more
wiley +1 more source