Results 41 to 50 of about 1,526,543 (294)

Leveraging Devices, Data and Discovery for Smarter Healthcare in Japan [PDF]

open access: yesHealthcare Informatics Research, 2011
ObjectivesOver the past decade, hospitals and clinics have gradually adopted hospital information systems, including provider order entries and electronic health records.
Tomohiro Sawa
doaj   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker   +11 more
wiley   +1 more source

On a Formal and User-friendly Linguistic Approach to Access Control of Electronic Health Data [PDF]

open access: yes, 2013
The importance of the exchange of Electronic Health Records (EHRs) between hospitals has been recognized by governments and institutions. Due to the sensitivity of data exchanged, only mature standards and implementations can be chosen to operate.
Margheri, Andrea   +3 more
core   +1 more source

Supporting Survivor‐Centered Care Through Digital Health Integration

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Survivors of childhood cancer face barriers to receiving guideline‐based, long‐term follow‐up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing.
Jordan G. Marchak   +15 more
wiley   +1 more source

Development and Pilot-Test of Blockchain-Based MyHealthData Platform

open access: yesApplied Sciences, 2021
The concept of MyData emerged as a paradigm shift in personal data management and the process of seeking to transform the current organization-centered system.
Ye-Seul Bae   +7 more
doaj   +1 more source

Project HealthDesign: Rethinking the Power and Potential of Personal Health Records: Round One Final Report [PDF]

open access: yes, 2009
Describes an initiative to develop prototypes for next-generation personal health record applications on a common platform focused on self-management for better health.

core  

Comparison of birth weight between school health records and medical birth records in Denmark:determinants of discrepancies [PDF]

open access: yes, 2015
OBJECTIVE: To compare reported birth weight (BW) information in school health records with BW from medical birth records, and to investigate if maternal and offspring characteristics were associated with any discrepancies.
Baker, Jennifer L   +4 more
core   +2 more sources

Potential therapeutic targeting of BKCa channels in glioblastoma treatment

open access: yesMolecular Oncology, Volume 20, Issue 6, Page 1398-1419, June 2026.
This review summarizes current insights into the role of BKCa and mitoBKCa channels in glioblastoma biology, their potential classification as oncochannels, and the emerging pharmacological strategies targeting these channels, emphasizing the translational challenges in developing BKCa‐directed therapies for glioblastoma treatment.
Kamila Maliszewska‐Olejniczak   +4 more
wiley   +1 more source

A Blockchain-Applied Personal Health Record Application: Development and User Experience

open access: yesApplied Sciences, 2022
This study aims to introduce a novel blockchain-applied personal health records (PHR) application and validate its user experience. The system transmits the part corresponding to the patient’s personal information off-chain and prevents data forgery and ...
Ji Woong Kim   +3 more
doaj   +1 more source

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