Results 81 to 90 of about 16,949,743 (284)
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Inherited ataxias are clinically diverse neurodegenerative diseases, complicating the choice of outcome measures for trials. In spinocerebellar ataxia (SCA), regulatory concerns about the Scale for the Assessment and Rating of Ataxia (SARA) caused a shift toward functional SARA (f‐SARA), contributing to pivotal trial failure.
Christian Rummey +52 more
wiley +1 more source
A framework for personal health records in online social networking
, 2012 Since the early 20th century, the view has developed that high quality health care can be delivered only when all the pertinent data about the health of a patient is available to the clinician.
Van der Westhuizen, Eldridge Welner
core
Contextualising co-creation of value in electronic personal health records [PDF]
, 2014 This conceptual paper is a preliminary part of an ongoing study into take-up of electronic personal health records (ePHRs). The purpose of this work is to contextually ‘operationalise' Grönroos’ (2012) model of value co-creation in service for ePHRs ...
Lynda Andrews +5 more
core +1 more source
Going Mobile: How Mobile Personal Health Records Can Improve Health Care During Emergencies
JMIR mHealth and uHealth, 2014 Personal health records (PHRs), in contrast to electronic health records (EHRs) or electronic medical records (EMRs), are health records in which data are accessible to patients and not just providers.
Bouri, Nidhi, Ravi, Sanjana
doaj +1 more source
Arthritis Care &Research, EarlyView.Objective We characterized emergency department (ED) gout visits and identified patient characteristics and health services patterns contributing to ED presentations. Methods We conducted a population‐based study of ED gout visits in Ontario, Canada, between 2014 and 2023.
Timothy S. H. Kwok +7 more
wiley +1 more source
Arthritis Care &Research, EarlyView.Objective The objective of this article is to identify perceptions of patients with systemic lupus erythematosus (SLE) regarding artificial intelligence (AI)–based online symptom assessment tools, and the potential of these tools to address diagnostic barriers.
Olivia A. Stein +7 more
wiley +1 more source
Adaptations of Personal Health Record Platform for Medical Research on Chronic Diseases
EAI Endorsed Transactions on Pervasive Health and Technology, 2015 The article reports on experiences in e-Health platforms and services for supporting medical research into the causes and relationships among physiological parameters and health problems concerning different chronic diseases.
A. Krukowski, E. Vogiatzaki
doaj +1 more source
Arthritis Care &Research, EarlyView.Objective Although the definition of a gout flare is well established, the state of gout flare resolution has not yet been defined. This study aimed to explore patients’ experiences and perceptions of gout flare resolution. Methods Semistructured interviews were conducted with 24 people with gout, guided by open‐ended questions exploring their ...
Sarah Stewart +5 more
wiley +1 more source
Electronic health services for cardiac patients: a salutogenic approach
Finnish Journal of eHealth and eWelfare, 2013 Patient‐centricity is a name given to the on‐going transformation in health care delivery. The term is widely used and it has been given different interpretations in relation to the context of its use.
Janne Lahtiranta, Jani Koskinen
doaj
Arthritis Care &Research, EarlyView.Objective Our objective was to describe the social networks of Black individuals with rheumatic and musculoskeletal conditions and understand the clustering of health‐related behaviors to inform future community‐based, peer‐led interventions. Methods We used an adapted Personal Network Survey for Clinical Research (PERSNET) to map the personal social ...
Taussia Boadi +27 more
wiley +1 more source