American Journal of Community Psychology, EarlyView.Abstract Youth advisory boards are ubiquitous in community‐based research, yet there is limited description of their development or direct benefits to participants within international research contexts. This convergent mixed‐method study describes and evaluates the design and implementation of a bilingual International Youth Advisory Board (IYAB) of ...
Shelley L. Craig +7 more
wiley +1 more source
The Politics and Practice of Empowerment Evaluation and Social Interventions: Lessons from the Atlantic Community Action Program for Children Regional Evaluation [PDF]
, 2001 Madine VanderPlaat +2 more
openalex +1 more source
Exploring Oral Health Related Quality of Life in Rett Syndrome Using Directed Content Analysis
American Journal of Medical Genetics Part A, EarlyView.ABSTRACT No validated oral health‐related quality of life (OHRQOL) instrument currently exists for those with severe intellectual and developmental disabilities and who communicate non‐verbally. This qualitative study aimed to explore the domains that were important to the oral health‐related quality of life in individuals with Rett syndrome (RTT).
Yvonne Yee Lok Lai +4 more
wiley +1 more source
Review: Dangerous Offenders: Punishment and Social Order, Technology Transfer and Industrial Change in Europe, Tourism, Collaboration and Partnerships: Politics, Practice and Sustainability [PDF]
, 2001 Robert J. Menzies +2 more
openalex +1 more source
American Journal of Medical Genetics Part A, EarlyView.ABSTRACT This exploratory cross‐sectional study aimed to estimate the family quality of life (FQoL) among 70 Brazilian families with children with Cornelia de Lange syndrome (CdLS). Data were collected using sociodemographic and clinical data forms, the Barthel index for activities of daily living, and the Beach Center FQoL Scale, a 5‐point Likert tool
Aline Apis +8 more
wiley +1 more source
Book Reviews: Supporting Identity, Diversity and Language in the Early Years, Researching Racism in Education: Politics, Theory and Practice, Early Childhood Services: Theory, Policy and Practice, Rethinking Gender in Early Childhood Education [PDF]
, 2001 Judith K. Bernhard +3 more
openalex +1 more source
Patients, Practice, Practicality, and Politics
JACC: Cardiovascular Interventions, 2019 David R. Holmes +3 more
openaire +2 more sources
American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, EarlyView.ABSTRACT Investigations into the etiology and genetic basis of autism continue to drive much autism research, yet reports are emerging of this research not aligning with priorities of autistic people. Engagement of autistic people in the research process is a key way to take their perspectives on board.
Heidi Kristiina Kaljusto +2 more
wiley +1 more source
Social nature: theory, practice, and politics [PDF]
, 2002 Noel Castree, Bruce Braun
openalex +1 more source
American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, EarlyView.ABSTRACT International collaborations between high‐income countries (HICs) and low‐ and middle‐income countries (LMICs) have become increasingly essential in advancing global health, particularly within psychiatric research. These partnerships not only accelerate scientific discovery and enhance public health, but they also bring to light significant ...
Brenda Cabrera‐Mendoza +27 more
wiley +1 more source