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Fragile X Syndrome Diagnosis Patterns in a Multistate, Population-Based Cohort.
JAMA Netw OpenGhimire M +3 more
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Ethics of Population-Based Research
Journal of Law, Medicine & Ethics, 2007Multiple scholars and institutions have asked what distinguishes public health research from public health practice. Most often, they ask in order to have a clear definition of what one does in various public health settings to assess oversight and/or regulation of human subjects research.
Holly A, Taylor, Summer, Johnson
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Ethics in Population-Based Genetic Research
Accountability in Research, 2004Population-based genetic research, including genetic epidemiology, shows tremendous potential to elucidate the role of genes as causal factors in complex and common human diseases. Like all research with human subjects, full realization of these benefits requires careful attention to its ethical conduct, establishing an appropriate balance between ...
Matthew, DeCamp, Jeremy, Sugarman
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Sampling in population-based cancer caregivers research
Quality of Life Research, 2009Awareness that cancer impacts not only the person with the disease but also the family has increased, yet existing data provide limited information, primarily because of reliance on small geographically restricted samples. The current study used population-based sampling to develop a formula to compute the probability of survivors completing a survivor
Youngmee, Kim +4 more
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MCS: The status of population-based research
International Journal of Hygiene and Environmental Health, 2002MCS has been studied predominantly in clinical and occupational settings. Since the mid-1990's, a few investigators have examined dimensions of this controversial syndrome in the general population. In this discussion, the role of epidemiology in learning about MCS is presented.
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The Multiple Baseline Design for Evaluating Population-Based Research
American Journal of Preventive Medicine, 2007There is a need for pragmatic and rigorous research designs to evaluate the effectiveness of population-based health interventions. The randomized controlled trial (RCT) has limitations in its practicality, ethical appropriateness, and cost when evaluating population-based interventions.
Hawkins, NG +4 more
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Privacy protection and population-based health research
Social Science & Medicine, 1986In this article we discuss obstacles of privacy protection measures to population-based health research and we give suggestions for policies facilitating this research as well as protecting the privacy of the patient. Privacy is the capacity of the individual to determine which information is communicated to whom.
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