Results 161 to 170 of about 70,924,455 (311)

PARTICIPATORY DESIGN RESEARCH TO INTEGRATE PRIVACY LAW REQUIREMENTS AS DESIGN REQUIREMENTS FOR PATIENT PORTAL USER INTERFACE

, 2018
The increase in privacy legislation has motivated our research on integrating privacy law requirements as design requirements. An effective privacy compliance framework requires communication between privacy professionals and IT designers.
Aljohani, Maha
core  

Race and Household Income Are Associated With Disease Outcomes in Pediatric Patients With Antineutrophil Cytoplasmic Antibody–Associated Vasculitis Hospitalized in the United States

Arthritis Care &Research, EarlyView.
Objective Race and household income impact outcomes in patients with rheumatic conditions; however, their role in pediatric antineutrophil cytoplasmic antibody (ANCA)–associated vasculitis (AAV) remains poorly understood. We aimed to evaluate whether race and ethnicity and household income are associated with severe AAV disease and renal outcomes among
Roberto Alejandro Valdovinos, William Daniel Soulsby III, Emily von Scheven   +2 more
wiley   +1 more source

Privacy-by-Design Approach to Generate Two Virtual Clinical Trials for Multiple Sclerosis and Release Them as Open Datasets: Evaluation Study. [PDF]

J Med Internet Res
Demuth S, Rousseau O, Faddeenkov I, Paris J, De Sèze J, Baciotti B, Payet M, Guillaudeux M, Barreteau AF, Laplaud D, Edan G, Gourraud PA.   +11 more
europepmc   +1 more source

A Return to Normality: A Descriptive Qualitative Interview Study Exploring the Patient Experience of Gout Flare Resolution

Arthritis Care &Research, EarlyView.
Objective Although the definition of a gout flare is well established, the state of gout flare resolution has not yet been defined. This study aimed to explore patients’ experiences and perceptions of gout flare resolution. Methods Semistructured interviews were conducted with 24 people with gout, guided by open‐ended questions exploring their ...
Sarah Stewart, Anne Horne, Angelo Gaffo, Lisa K. Stamp, N. Lawrence Edwards, Nicola Dalbeth   +5 more
wiley   +1 more source

Privacy-by-Design with Federated Learning will drive future Rare Disease Research. [PDF]

J Neuromuscul Dis
Süwer S, Ullah MS, Probul N, Maier A, Baumbach J.   +4 more
europepmc   +1 more source

Submission to the Australian Law Reform Commission's review of privacy

, 2007
In this detailed submission to the Australian Law Reform Commission\u27s review of privacy laws, the Privacy Commissioner, Karen Curtis, calls for changes to a number of laws.
Office of the Privacy Commissioner
core  

Achieving Usable Security and Privacy Through Human-Centered Design

83113Users should always play a central role in the development of (software) solutions. The human-centered design (HCD) process in the ISO 9241-210 standard proposes a procedure for systematically involving users.
Schmitt, Hartmut, Polst, Svenja, Feth, Denis, Wiefling, Stephan, Iacono, Luigi Lo, Tolsdorf, Jan, Groen, Eduard C.   +6 more
core   +1 more source

Clinician and Patient Factors Associated With Long‐Term Glucocorticoid Use in People With Rheumatoid Arthritis Receiving Advanced Therapies

Arthritis Care &Research, EarlyView.
Objective Despite guideline recommendations, long‐term glucocorticoid (GC) use is common in rheumatoid arthritis (RA). We conducted a clinician survey nested within a large registry to identify patient and clinician factors associated with GC use. Methods Clinicians contributing patients to the CorEvitas Rheumatoid Arthritis Registry were surveyed ...
Michael D. George, George Reed, Matthew D. Kearney, Peter F. Cronholm, Kevin Kane, Jeffrey R. Curtis, Dimitrios A. Pappas, Joel M. Kremer   +7 more
wiley   +1 more source

Privacy by Design: From Research and Policy to Practice - the Challenge of Multi-disciplinarity

Annual Privacy Forum, 2015
Pagona Tsormpatzoudi, B. Berendt, Fanny Coudert   +2 more
semanticscholar   +1 more source

Short‐Term Response to Biologic Therapy in Psoriatic Arthritis Is Not Influenced by Disease Duration at Initiation of Therapy

Arthritis Care &Research, EarlyView.
Objective We aimed to determine whether the short‐term response to biologics in biologic‐naive psoriatic arthritis (PsA) is better in patients initiating biologic treatment early in the disease course. Methods Patients with PsA who started on biologic therapy from the year 2000 to 2025 were included for analysis.
Sung Min Cho, Shangyi Gao, Daniel Pereira, Richard J. Cook, Dafna D. Gladman   +4 more
wiley   +1 more source