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Toward a Holistic Privacy Requirements Engineering Process: Insights From a Systematic Literature Review

open access: yesIEEE Access
Privacy requirements engineering is a crucial aspect of privacy engineering. It aims to integrate privacy principles into organizational and technical processes throughout the software development lifecycle.
Guntur Budi Herwanto   +3 more
doaj   +1 more source

L’identità digitale nel metaverso [PDF]

open access: yesDemocrazia e Diritti Sociali, 2023
The essay analyses and explores the concept of personal identity in the light not only of the already tested digital dimension but also of a further evolution of the Internet represented by the so-called metaverse to be understood as a convergence zone ...
Michele Iaselli
doaj  

Privacy self-management and the issue of privacy externalities: of thwarted expectations, and harmful exploitation

open access: yesInternet Policy Review, 2020
This article argues that the self-management of one’s privacy is impossible due to privacy externalities. Privacy externalities are the negative by-product of the services offered by some data controllers, whereby the price to ‘pay’ for a service ...
Simeon de Brouwer
doaj   +1 more source

PharmaLedger: Blockchain-Enabled Healthcare: Privacy-Enhancement with Blockchain

open access: yesBlockchain in Healthcare Today, 2022
Topics such as supply chain, clinical trials and health data will be explored along with how blockchian can exist in harmony with GDPR.
Halid Kayhan, Co-lead for Regulatory, Legal and Data Privacy Framework, PharmaLedger
doaj   +1 more source

Privacy and Security Best Practices for IoT Solutions

open access: yesIEEE Access, 2023
The rapid increase in Internet of Things (IoT) applications has raised security and privacy issues due to the huge amount of data acquired by IoT devices and transmitted through the Internet.
Matteo Anedda   +7 more
doaj   +1 more source

Reusable Elements for the Systematic Design of Privacy-Friendly Information Systems: A Mapping Study

open access: yesIEEE Access, 2019
Privacy by design is a new paradigm that promotes embedding privacy considerations throughout the development of information systems, to protect user privacy. Privacy engineering is the nascent field of research and practice that aims to realize this new
Julio C. Caiza   +4 more
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker   +11 more
wiley   +1 more source

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook   +6 more
wiley   +1 more source

Responsible innovation at work: gamification, public engagement, and privacy by design

open access: yesJournal of Responsible Innovation, 2022
Public engagement is crucial to strengthen responsibility frameworks in highly innovative contexts, including as part of business organisations. One particular innovation that calls for public engagement is gamification.
Daniele Ruggiu   +7 more
doaj   +1 more source

Efficacy and Safety Analysis of Roxarestat in Regulating Renal Anemia in Patients on Maintenance Hemodialysis

open access: yesTherapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Objective To compare the efficacy and safety of roxarestat versus recombinant human erythropoietin (rhEPO) in the management of renal anemia in patients undergoing maintenance hemodialysis. Methods This was a prospective, open‐label, randomized controlled trial.
Lingling Chen, Junjie Zhu, Qiaonan Ge
wiley   +1 more source

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