Results 21 to 30 of about 228,121 (255)

Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a hereditary blood disorder in which abnormal haemoglobin leads to severe anaemia, painful crises and organ failure. Caregivers’ health literacy (HL) – their ability to assess, understand and apply information, and interact with healthcare professionals – is crucial for managing children with SCD, yet ...
Melanie Bruinooge   +6 more
wiley   +1 more source

Influence of Perceived Legitimacy and Perceived Value of Professional Association Members on Attitudinal Loyalty

open access: yesAdministrative Sciences
This article explores the discoveries related to organizational legitimacy, focusing on its three key types: pragmatic, moral, and cognitive. It examines how perceived value plays a crucial role in the generation of legitimacy and its direct impact on ...
María-Elena Sánchez-del-Río-Vázquez   +3 more
doaj   +1 more source

Psychosocial Functioning After Pediatric Bone Sarcoma: Generic and Survivor‐Specific Outcomes in Adolescent and Young Adult Patients

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric bone sarcoma patients and survivors may experience psychosocial challenges related to childhood cancer after their intensive, body‐altering treatment. This cross‐sectional study aimed to evaluate generic and survivor‐specific psychosocial outcomes in a national cohort of pediatric bone sarcoma patients and survivors, and ...
Hinke van der Hoek   +14 more
wiley   +1 more source

Ironic Medications: A Narrative‐Based Psycho‐Educational Intervention to Explore Patient–Provider Communication in Adolescents With Haematological Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adolescents with haematological malignancies face significant emotional and relational challenges, often accompanied by difficulties in communicating their needs within the healthcare context. To address these issues, a narrative‐based psycho‐educational intervention based on the creation and prescription of Ironic Medications was ...
Marta Stoppa   +7 more
wiley   +1 more source

BMT4me En Español: Multisite Feasibility and Usability Testing of a Spanish‐Language mHealth Adherence Support App for Spanish‐Speaking Caregivers of Children After Hematopoietic Stem Cell Transplantation and Cancer Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Medication nonadherence during the first 100 days after pediatric hematopoietic stem cell transplantation (HSCT) and during oncology treatment increases risk for complications. BMT4me is a caregiver‐facing mobile health (mHealth) application providing medication reminders, symptom tracking, and note‐taking features to support ...
Micah A. Skeens   +4 more
wiley   +1 more source

Political Commitment under an Authoritarian Regime: Professional Associations and the Islamist Movement as Alternative Arenas in Jordan [PDF]

open access: yesInternational Journal of Conflict and Violence, 2012
How does political commitment develop when actors are confronted with authoritarian processes? Under a liberal authoritarian regime, even the creation of democraticinstitutions may mean authoritarian stabilization (contradicting classical transition ...
Pénélope Larzillière
doaj  

Perspectives of the Nurses to Professional Associations

open access: yesSağlık ve Hemşirelik Yönetimi Dergisi, 2020
INTRODUCTION: This research was carried out to determine the views of the nurses working in Erzurum on professional associations. METHODS: This research was carried out in a descriptive and cross-sectional design with 550 nurses between March 2015 and ...
Serap Altuntaş, Şeyda Yetginler
doaj   +1 more source

Constructing Vocations. The Promotion of Vocations by Professional Associations

open access: yesSwiss Journal of Sociology, 2022
Current research on the promotion of vocations focuses mainly on best practices of institutionalized vocational guidance as well as on individually constructed images of vocations.
Bürgi Regula, Kamm Chantal
doaj   +1 more source

Misperception of Body Weight After Childhood Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Misperception of body weight can negatively impact the weight management efforts of childhood cancer survivors (CCSs). Both being overweight or underweight are associated with chronic health conditions commonly observed in CCS; therefore, accurate weight perception is critical for reducing long‐term health risks.
Fabiën N. Belle   +8 more
wiley   +1 more source

Bridging the Gap in Neuroblastoma Care: Consensus‐Based Statements With Recommendations for Improved Patient and Caregiver Experiences

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Neuroblastoma's complex, heterogeneous biology poses significant diagnostic and therapeutic challenges, often requiring caregivers to absorb complex information and participate in time‐sensitive decisions. However, caregivers often feel unprepared to evaluate options.
Vickie Buenger   +8 more
wiley   +1 more source

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