Results 221 to 230 of about 2,941,811 (325)
American Journal of Medical Genetics Part A, EarlyView.ABSTRACT This exploratory cross‐sectional study aimed to estimate the family quality of life (FQoL) among 70 Brazilian families with children with Cornelia de Lange syndrome (CdLS). Data were collected using sociodemographic and clinical data forms, the Barthel index for activities of daily living, and the Beach Center FQoL Scale, a 5‐point Likert tool
Aline Apis +8 more
wiley +1 more source
Moral reasoning among Dutch community pharmacists: testing the applicability of the Australian Professional Ethics in Pharmacy test. [PDF]
Int J Clin Pharm, 2019 Kruijtbosch M +4 more
europepmc +1 more source
American Journal of Medical Genetics Part A, EarlyView.ABSTRACT Angelman syndrome (AS) is a neurodevelopmental disorder characterized by severe developmental delays, typical facial features, ataxia, seizures, speech impairments, sleeping difficulties, and a happy demeanor. Caregivers of individuals with AS often report feeding problems, with difficulties including issues with obesity, failure to gain ...
Ciara Cassidy +6 more
wiley +1 more source
The promotion of breastfeeding and professional ethics [PDF]
Ital J Pediatr, 2015 Davanzo R.
europepmc +1 more source
American Journal of Medical Genetics Part A, EarlyView.ABSTRACT Gastrointestinal (GI) symptoms are common in CHARGE syndrome, but their frequency and characteristics remain poorly documented due to the complex nature of CHARGE syndrome. This study aimed to determine the prevalence of GI issues in CHARGE syndrome and their impact on quality of life (QoL).
Annie Kakamousias, Kim Blake
wiley +1 more source
Conflict of interest and professional ethics [PDF]
Ital J Pediatr, 2015 Semplici S.
europepmc +1 more source