Results 251 to 260 of about 3,064,152 (348)

Maintaining trust in uncertain times: Funding pauses and the ethical cost to community‐engaged research

open access: yesAmerican Journal of Community Psychology, EarlyView.
Abstract Federal funding pauses, once considered rare, are increasingly disrupting the stability and continuity of community‐engaged research. Even projects with active, awarded grants are experiencing the strain of funding uncertainty, raising substantive concerns among research teams and community partners. These disruptions extend beyond operational
Brynn E. Sheehan
wiley   +1 more source

Promoting caring communities through collective action

open access: yesAmerican Journal of Community Psychology, EarlyView.
Abstract Current times call for the promotion of caring communities through collective action. In caring communities, we feel connected, experience a sense of belonging, and deeply care about each other's health and well‐being. Seymour Sarason's notion of social change as the creation of settings may have anticipated the art and practice of creating ...
Yolanda Suarez‐Balcazar
wiley   +1 more source

The Head Circumference Height Index (HCH‐I) to Quantify Relative Macrocephaly and Aid Identification of Hypochondroplasia in Children

open access: yesAmerican Journal of Medical Genetics Part A, EarlyView.
ABSTRACT Hypochondroplasia (HCH) is a rare skeletal dysplasia caused by pathogenic variants in the FGFR3 gene. We hypothesized that the relative disproportion between head circumference and height in HCH might be diagnostically informative and generated a simple index of head‐stature disproportion to help pediatricians diagnose HCH.
Moira S. Cheung   +3 more
wiley   +1 more source

Mortality Patterns and Phenotypic Clusters in Trisomy 13: A Population‐Based Study From Japan

open access: yesAmerican Journal of Medical Genetics Part A, EarlyView.
ABSTRACT Trisomy 13, the third most common autosomal trisomy after trisomy 21 and trisomy 18, is associated with a significantly high infant mortality rate. However, large‐scale studies examining causes of death in trisomy 13 remain scarce. Therefore, we aimed to better understand the mortality patterns.
Narumi Kato   +2 more
wiley   +1 more source

A Collaborative Approach to Pediatric Genetic Evaluation in the Era of Genomic Medicine

open access: yesAmerican Journal of Medical Genetics Part A, EarlyView.
ABSTRACT To address the increased demand for genetic services and shortage of medical geneticists (MG), a collaborative pilot program was developed with a two‐part approach to care: (1) Initial genetic counselor (GC) appointment with exome sequencing (ES) and (2) follow‐up MG evaluation.
Sarah Jurgensmeyer Langas   +5 more
wiley   +1 more source

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