Results 41 to 50 of about 17,302,544 (315)

Neuropsychological and Educational Outcomes in Shwachman–Diamond Syndrome—A Report From the North American Shwachman–Diamond Syndrome Registry

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Shwachman–Diamond syndrome (SDS) is a rare autosomal recessive ribosomopathy characterized by bone marrow failure and multisystem involvement, with emerging evidence of associated neurocognitive impairment. Methods We conducted a retrospective study of 240 individuals with biallelic Shwachman–Bodian–Diamond syndrome (SBDS) mutations
Jane Koo, Melissa Gerstle, Leah Cheng, Richard Cooper, Katherine Coyne, Claire Dusa, Naomi E. Joffe, Diana Schwarz, Sarah Steltz, Akiko Shimamura, Kasiani C. Myers, Thea Quinton   +11 more
wiley   +1 more source

Translation and evaluation of the Infant Characteristics Questionnaire in a sample of Swedish patients with craniosynostosis

Journal of Plastic Surgery and Hand Surgery
Background: Research on the psychological development of infants with craniosynostosis would benefit from further properly validated tailored measures. Aim: Our study aimed to translate and evaluate the Infant Characteristics Questionnaire (ICQ; Bates ...
Johanna Kling, Lars Kölby, Marizela Kljajić   +2 more
doaj   +1 more source

Psychological-medical-pedagogical commissions in the context of inclusive education: Key evaluation indicators

RUDN journal of Sociology, 2019
The education of children with disabilities is one of the priorities of the Russian social-economic development. The article considers the current issues in the organization of the activities of the psychological-medical-pedagogical commissions ...
L Yu Vakorina, O G Prikhodko, O V Yugova
doaj   +1 more source

The power of multivariate approach in identifying EEG correlates of interlimb coupling

Frontiers in Human Neuroscience, 2023
Interlimb coupling refers to the interaction between movements of one limb and movements of other limbs. Understanding mechanisms underlying this effect is important to real life because it reflects the level of interdependence between the limbs that ...
Sophie Hascher, Anastasia Shuster, Roy Mukamel, Ori Ossmy   +3 more
doaj   +1 more source

Beyond the Document: A Single‐Center Qualitative Study of Survivorship Care Plan Barriers and Opportunities Across Pediatric Oncology Stakeholders

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Survivorship care plans (SCPs) summarize cancer treatment and guide risk‐based follow‐up for cancer survivors, yet remain difficult to create, share, and use. Stakeholder perspectives are needed to inform usable approaches.
Molly S. Talman, Emma Fleisher, Megan E. Salwei, Debra Friedman, Laurie Novak   +4 more
wiley   +1 more source

Impact of Radiation Therapy on Physical and Psychosocial Health of Adolescents and Young Adults: A Joint Report From the Children's Oncology Group AYA and Radiation Oncology Committees

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Rates of cancer among adolescents and young adults (AYA), age 15–39 years, are increasing. Consequently, radiation oncologists are treating more AYAs who have diagnoses spanning both pediatric and adult practices. Compared to pediatric and older adult patients, AYAs face a unique set of challenges.
Hesham Elhalawani, Rachel K. Peterson, Avani D. Rao, Laurie J. McKenzie, Ahmed Magdy Elmotayam, Leslie Chang, Michael Roth, Susan L. McGovern   +7 more
wiley   +1 more source

Inter-American Development Bank Sustainability Report 2020: Global Reporting Initiative Annex [PDF]

, 2021
The Global Reporting Initiative (GRI) sets global standards for sustainability reporting, relying on best practices for reporting on a range of economic, environmental, and social impacts. This is the IDBs fifth GRI annex, prepared as a supplement to the
Inter-American Development Bank
core   +1 more source

Social Functioning Within the First Years After Pediatric Brain Tumor Diagnosis and the Relationship With Family Psychosocial Risk

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Survivors of pediatric brain tumors (PBTs) can experience long‐term social difficulties, impacting quality of life. Beyond medical and environmental factors, family psychosocial risk may play a role in social outcomes by shaping the caregiving environment and may provide intervention options.
Renske H. Houben, Marisa H. Huisman, Martha A. Grootenhuis, Femke K. Aarsen, Marita Partanen   +4 more
wiley   +1 more source

Evolving brain function and connectivity patterns during mentalizing in children and adults

Communications Biology
Mentalizing, the ability to infer others’ thoughts and intentions, relies on a network of brain regions whose functional connectivity changes across development.
Réka Borbás, Plamina Dimanova, Dennis Saikkonen, Elena Federici, Sofia Scatolin, Nora M. Raschle   +5 more
doaj   +1 more source

Longitudinal touchscreen use across early development is associated with faster exogenous and reduced endogenous attention control

Scientific Reports, 2021
Childhood screen time is associated with both attentional difficulties (for television viewing) and benefits (in action video gamers), but few studies have investigated today’s pervasive touchscreen devices (e.g.
Ana Maria Portugal, Rachael Bedford, Celeste H. M. Cheung, Luke Mason, Tim J. Smith   +4 more
doaj   +1 more source