Results 31 to 40 of about 9,851,827 (283)

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker   +11 more
wiley   +1 more source

Serological Benefit of SARS‐CoV‐2 Vaccination Relative to Infection in Children With Acute Lymphoblastic Leukemia

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with acute lymphoblastic leukemia (ALL) are at risk of severe outcomes from SARS‐CoV‐2 (SCV2). In the post‐pandemic context, where most children have been infected with SCV2, there are limited data on whether vaccination remains beneficial in children with ALL.
Janna R. Shapiro   +11 more
wiley   +1 more source

The Information Commons: a public policy report [PDF]

open access: yes, 2004
This report describes the history of the information commons, presents examples of online commons that provide new ways to store and deliver information, and concludes with policy recommendations.
Kranich, Nancy C.
core   +4 more sources

Floods perception in Suceava river basin.

open access: yesRiscuri şi Catastrofe, 2018
This study analyses the survey made from May 2016 till August 2016 with the inhabitants of the Suceava River basin, both in urban and rural settlements.
PORCUȚAN ADRIANA MIHAELA
doaj   +1 more source

Wybrane zagadnienia z zakresu dostępu do informacji publicznej w samorządzie terytorialnym

open access: yesPrzegląd Prawniczy Uniwersytetu im. Adama Mickiewicza, 2016
The right of access to public information is one of the fundamental constitutional civil rights in the Polish legal system. Its rules on practical implementation regulate the law of access to public information.
Mateusz Karciarz
doaj   +1 more source

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook   +6 more
wiley   +1 more source

The protection of the Spanish language in the framework of the regional parliaments: the access in Spanish to the public information on their official websites

open access: yesRevista de Derecho Político, 2018
: The Spanish Constitution establishes in the article 3 that the Spanish is the official language of the State. It also enshrines the existence of mutilinguism in the country.
Ainhoa Uribe Otalora
doaj   +1 more source

El derecho de acceso al procedimiento administrativo en trámite: el dilema entre interesados y terceros

open access: yesRevista Vasca de Administración Pública, 2022
This study aims to analyze certain vicissitudes of the right of access to public information of interested parties and third parties in pending administrative proceedings underway in the light of the first additional provision of Act 19/2013, of December
EDUARD-VALENTIN PAVEL
doaj   +1 more source

Increased Risk of Sarcomas in Children With Congenital Anomalies: Findings From the Genetic Overlap Between Anomalies and Cancer in Kids (GOBACK) Registry Linkage Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric sarcomas are a heterogeneous group of tumors that contribute disproportionately to cancer mortality in children. Although congenital anomalies are among the strongest known risk factors for childhood cancer, the risk of specific sarcoma subtypes among affected individuals has not yet been thoroughly evaluated. Procedure We
Russ Wolters   +17 more
wiley   +1 more source

Therapeutic Apheresis for Intravenous Methylprednisolone‐Refractory Neuromyelitis Optica Spectrum Disorder: Clinical and Radiological Outcomes in a Single‐Center Case Series

open access: yesTherapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Neuromyelitis optica spectrum disorder (NMOSD) is a relapsing autoimmune disease of the central nervous system. High‐dose intravenous methylprednisolone (IVMP) is the standard first‐line therapy for acute attacks, although some patients remain refractory.
Wataru Horiguchi   +5 more
wiley   +1 more source

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