Results 71 to 80 of about 64,679 (258)

The International Consortium for Arthrogryposis: A Collaborative Framework for Early Detection, Care, Research, and Education

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Arthrogryposis multiplex congenita (AMC) is a group of rare congenital conditions, characterized by multiple joint contractures but may involve any body system including central nervous system. AMC is etiologically heterogeneous, with over 400 genetic and many non‐genetic causes implicated in its prenatal development.
Shahrzad Nematollahi, Noa Bouzaglo, Victoria Castillo Sanchez, Johanna I. P. de‐Vries, Klaus Dieterich, Alicja Fafara, Isabel Filges, Philip Giampietro, Göknur Haliloğlu, Judith Hall, Coleman Hilton, Remco Jansen, Valentina Maestri, Carolina Navalon, Daniel Natera de Benito, Tony Pan, Ani Samargian, Bonita Sawatzky, Harold van Bosse, Paul A. Trainor, Noémi Dahan‐Oliel   +20 more
wiley   +1 more source

North American Delphi Consensus Study on Sinonasal Malignancy Survivorship Care

International Forum of Allergy &Rhinology, EarlyView.
ABSTRACT Background Survival for patients with sinonasal cancers has improved over the past decades, but there are no dedicated survivorship guidelines for this cohort. Objective To understand experts’ priorities and perspectives on key survivorship tenets (surveillance, second tumor screening, toxicity, and symptom management).
Matheus Sewastjanow‐Silva, Samagra Jain, Rita Snyder, Erin L. McKean, Ralph Abi Hachem, Nithin D. Adappa, J. Ken Byrd, Ricardo L. Carrau, Marc A. Cohen, Ivan H. El‐Sayed, Mathew N. Geltzeiler, Ehab Y. Hanna, Edward C. Kuan, Nyall R. London Jr., Zoukaa B. Sargi, Carl H. Snyderman, Marilene B. Wang, Ian J. Witterick, Shirley Y. Su   +18 more
wiley   +1 more source

3372 Developing a REDCap Database to Understand Partnership Cultivation Efforts

Journal of Clinical and Translational Science, 2019
OBJECTIVES/SPECIFIC AIMS:.Outline the development and purpose of the partnership brokering database in REDCap. Provide an overview of the tool and how it works.
Grisel M. Robles-Schrader, Gina Curry, Josefina Serrato, Jen Brown, Keith A Herzog   +4 more
doaj   +1 more source

REDCap OnCore Client - Presentation for the 2019-11-22 REDCap Friday Call

, 2019
The REDCap OnCore Client provides integration between REDCap and Forte Research's OnCore. It allows REDCap project builders to associate a REDCap project with an OnCore protocol and import enrollment data into REDCap.
Chase, Philip, Joe Stokes, Harshita Koranne   +1 more
openaire   +1 more source

Endoscopic Proximal Hamstring Repairs Remain Safe and Beneficial With High Patient Satisfaction at a Minimum of 6‐Year Follow‐Up

Arthroscopy, EarlyView.
Purpose To evaluate midterm outcomes of endoscopic proximal hamstring repair in a previously established cohort. Methods A retrospective study design was used for a midterm (minimum 6 years) follow‐up time. Patients completed the questionnaires over the phone or electronically on REDCap after consent. The questionnaires included the modified Harris Hip
Shannon N. Greenwood, Temitope Adebayo, Emily K. Reinke, Amanda N. Fletcher, Brian D. Lewis, Elizabeth J. Scott, Richard Charles Mather   +6 more
wiley   +1 more source

Effective Performance of the 2022 American College of Rheumatology/EULAR Classification Criteria for Antineutrophil Cytoplasmic Antibody–Associated Vasculitis in Pediatric Patients: An ARChiVe Study

Arthritis &Rheumatology, EarlyView.
Objective To assess the 2022 American College of Rheumatology (ACR)/EULAR classification criteria for antineutrophil cytoplasmic antibody–associated vasculitis (AAV) in children with chronic small‐to‐medium vessel vasculitis. Methods A cohort of 574 patients, identified by physician's diagnosis (MD‐diagnosis) in A Registry of Childhood Vasculitis, was ...
David A. Cabral, Else S. Bosman, Nick McPhate, Simranpreet K. Mann, Kirandeep K. Toor, Kimberly A. Morishita, Raashid Luqmani, Michael W. Beresford, James Bistolarides, Sarah Campillo, Sirirat Charuvanij, Kathryn Cook, Paul Dancey, Marietta de Guzman, Samundeeswari Deepak, Barbara Eberhard, Melissa Elder, Samuel Gagne, Katie Harrison, Adam Huber, Archana Khan, Susan Kim, Marisa S. Klein‐Gitelman, Tzielan C. Lee, Suzanne C. Li, Neil Martin, Flora McErlane, L. Nandini Moorthy, Alvaro H. Orjuela, Jonathan Park, Phil Riley, Alan M. Rosenberg, Susan Shenoi, Vidya Sivaraman, Sodality Sutnga, Tamara Tanner, Stacey E. Tarvin, Marinka Twilt, Linda Wagner‐Weiner, Rae S. M. Yeung, Kelly L. Brown, for the ARChiVe Investigators Network within the PedVas Initiative   +41 more
wiley   +1 more source

Data management plan and REDCap mobile data capture for a multi-country Household Air Pollution Intervention Network (HAPIN) trial

Digital Health
Background Household air pollution (HAP) is a leading environmental risk factor accounting for about 1.6 million premature deaths mainly in low- and middle-income countries (LMICs).
Shirin Jabbarzadeh, Lindsay M Jaacks, Amy Lovvorn, Yunyun Chen, Jiantong Wang, Lisa Elon, Azhar Nizam, Vigneswari Aravindalochanan, Jean de Dieu Ntivuguruzwa, Kendra N Willams, Alexander Ramirez, Michael A Johnson, Ajay Pillarisetti, Thangavel Gurusamy, Ghislaine Rosa, Anaité Diaz-Artiga, Juan C Romero, Kalpana Balakrishnan, William Checkley, Jennifer L Peel, Thomas F Clasen, Lance A Waller   +21 more
doaj   +1 more source

Trauma Registry: Trauma Quality indicators analysis in hospitalized patients [PDF]

Revista do Colégio Brasileiro de Cirurgiões
Purpose: to consolidate a Trauma Register (TR) trough REDCap data acquisition platform and to validate, in this context, local Quality Indicators (QI) as improvement opportunities in trauma management.
LUCA GIOVANNI ANTONIO PIVETTA, PEDRO DE SOUZA LUCARELLI ANTUNES, GIOVANNA MENNITTI SHIMODA, JOSÉ GUSTAVO PARREIRA, JACQUELINE ARANTES GIANNINNI PERLINGEIRO, JOSE CESAR ASSEF   +5 more
doaj   +1 more source

A survey on the teaching of introductory nervous system content in undergraduate courses

Anatomical Sciences Education, EarlyView.
Abstract Teaching introductory or foundation level concepts about anatomy and physiology of the nervous system to undergraduate students presents a conundrum for educators—how to provide students with sufficient knowledge for a successful learning experience and outcome without overwhelming students and impacting student progression and retention.
Gabrielle Todd, Revecca Kakavanos‐Plew, Kay L. Double   +2 more
wiley   +1 more source

Implementation of REDCap mobile app in an oral HIV clinical study

BMC Public Health
Background In Peru, HIV cases are highly concentrated among men who have sex with men (MSM). Despite the availability of anti-retroviral therapy, people living with HIV (PWH) have higher levels of oral diseases.
Ana Lucia Seminario, Ashley E. Karczewski, Sara Stanley, Javier Valencia Huamani, Juan José Montenegro, Karla Tafur, Ana Bautista Julca, Frederick L. Altice   +7 more
doaj   +1 more source