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Methodological challenges of register‐based research
Statistica Neerlandica, 2011Administrative data have become more and more important for both official statistics and academic research. However, the, more administrative registers are used, the more methodological issues arise (Bakker, 2009; Daas, Kuijvenhoven and Zeelenberg, 2010a). This was apparent at the 2011 congress of the International Statistical Institute, when more than
Bakker, B.F.M., Daas, P.
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Register-based research: Some methodological considerations
Scandinavian Journal of Public Health, 2011Aims: Collecting new research data is often time consuming and expensive and it may be difficult to recruit volunteers to provide data for research. We should therefore make sure that we do not collect data that already are available and in the Nordic countries we have an opportunity to use national registers for certain types of research.
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Ethical problems in register based medical research
Theoretical Medicine, 1988The first main purpose of this paper is to identify and to distinguish between a number of problems and conflicts of interest in the area where medical personal registers are used in research, particularly when the registers are computerized. The second main purpose is to suggest and comment upon a method for solving or minimizing such conflicts of ...
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[Health-related register-based research in Denmark].
Ugeskrift for laeger, 2020Danish researchers have a unique possibility for producing high-quality observational studies through the Danish registers. The intention of this review is to provide an introduction to data sources, access and linkage of the Danish registers, primarily from Statistics Denmark, the Danish Health Data Authority and the Danish clinical quality databases.
Rasmus, Gregersen +2 more
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[Register-based research and clinical studies : Possibilities, limitations and perspectives].
Orthopadie (Heidelberg, Germany), 2023Register-based research offers a good opportunity to generate knowledge on questions from the clinical practice. Methodologically high-quality register studies can complement clinical studies, especially for questions that cannot be answered with randomized controlled trials (RCT).
Thomas, Bierbaum +3 more
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The Lancet Psychiatry, 2022
A childhood cancer diagnosis and treatment-induced somatic late effects can affect the long-term mental health of survivors. We aimed to explore whether childhood cancer survivors are at higher risk of psychiatric disorders later in life than their siblings and the general population.In this register-based cohort study (part of the Socioeconomic ...
Frederiksen, Line Elmerdahl +18 more
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A childhood cancer diagnosis and treatment-induced somatic late effects can affect the long-term mental health of survivors. We aimed to explore whether childhood cancer survivors are at higher risk of psychiatric disorders later in life than their siblings and the general population.In this register-based cohort study (part of the Socioeconomic ...
Frederiksen, Line Elmerdahl +18 more
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Time-to-event methodology improved statistical evaluation in register-based health services research
Journal of Clinical Epidemiology, 2017Complex longitudinal sampling and the observational structure of patient registers in health services research are associated with methodological challenges regarding data management and statistical evaluation. We exemplify common pitfalls and want to stimulate discussions on the design, development, and deployment of future longitudinal patient ...
Tobias Bluhmki +6 more
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2021
BACKGROUND Time is considered an essential determinant in the initial care of trauma patients. In Norway, response time (ie, time from dispatch center call to ambulance arrival at scene) is a controversial national quality indicator. However, no national requirements for response times have been established.
Inger Marie Waal Nilsbakken +3 more
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BACKGROUND Time is considered an essential determinant in the initial care of trauma patients. In Norway, response time (ie, time from dispatch center call to ambulance arrival at scene) is a controversial national quality indicator. However, no national requirements for response times have been established.
Inger Marie Waal Nilsbakken +3 more
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Towards a National Remote Access System for Register-Based Research
2016In Finland, a lot of register-based data is available for research purposes, e.g. through Statistics Finland’s remote access system. When a huge quantity of highly detailed micro data is available, maintaining the confidentiality must be carefully ensured.
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Nordic Journal of Psychiatry
Bipolar II disorder (BD-II) is a subtype of bipolar disorder characterized by recurrent episodes of depression and hypomania, without full manic episodes. Unfortunately, BD-II is not included as a diagnostic code in the ICD-10, which means that the Danish Psychiatric Central Research Register (DPCRR), where diagnoses are recorded according to the ICD ...
Søren Dinesen Østergaard +4 more
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Bipolar II disorder (BD-II) is a subtype of bipolar disorder characterized by recurrent episodes of depression and hypomania, without full manic episodes. Unfortunately, BD-II is not included as a diagnostic code in the ICD-10, which means that the Danish Psychiatric Central Research Register (DPCRR), where diagnoses are recorded according to the ICD ...
Søren Dinesen Østergaard +4 more
openaire +2 more sources