Results 201 to 210 of about 722,064 (339)

Improving the Connection Between Population-Based and National Clinical Pediatric Cancer Registries-A Pilot Study on Neuroblastoma: The Italian BENCHISTA-Ita Project. [PDF]

Cancers (Basel)
Didonè F, Tittarelli A, Tresoldi C, Contiero P, Capocaccia R, Haupt R, Fragola M, Sessa M, Savoia F, Sacerdote C, Conte M, Gatta G, Botta L, Benchista-Ita Working Group.   +13 more
europepmc   +1 more source

ePS03.2 Real-world outcomes in patients (pts) with cystic fibrosis (CF) treated with ivacaftor (IVA): analysis of 2014 US and UK CF registries

, 2016
Yongshen Bai, M. Higgins, N. Volkova, L. Bengtsson, Shuangying Tian, A. Sewall, S. Nyangoma, A. Elbert, D. Bilton   +8 more
openalex   +1 more source

To switch or not to switch: results of a nationwide guideline of mandatory switching from originator to biosimilar etanercept. One-year treatment outcomes in 2061 patients with inflammatory arthritis from the DANBIO registry [PDF]

, 2018
Bente Glintborg, Anne Gitte Loft, Emina Omerovic, Oliver Hendricks, Asta Linauskas, Jakob Espesen, Kamilla Danebod, Dorte Vendelbo Jensen, Henrik Nordin, Emil Barner Dalgaard, Stavros Chrysidis, Salome Kristensen, Johnny Raun, Hanne Lindegaard, Natalia Manilo, Susanne Højmark Jakobsen, Inger Marie Jensen Hansen, Dorte Dalsgaard Pedersen, Inge Juul Sørensen, Lis Smedegaard Andersen, Jolanta Grydehøj, Frank Mehnert, Niels Steen Krogh, Merete Lund Hetland   +23 more
openalex   +1 more source

Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein, Maximilian Mönch, Meret Herdick, Frauke Stascheit, Sarah Hoffmann, Hannah Preßler, Philipp Mergenthaler, Carla Dusemund, Paolo Doksani, Haoqi Sun, Pushpa Narayanaswami, Andreas Meisel, Lea Gerischer, Sophie Lehnerer   +13 more
wiley   +1 more source

Japanese multicenter registry evaluating the retrograde approach for chronic coronary total occlusion [PDF]

, 2013
Etsuo Tsuchikane, Masahisa Yamane, Makoto Mutoh, Tetsuo Matsubara, Tsutomu Fujita, Shigeru Nakamura, Toshiya Muramatsu, Atsunori Okamura, Yasumi Igarashi, Akitsugu Oida, Retrograde Summit Investigators   +10 more
openalex   +1 more source

Spanish National Hip Fracture Registry (RNFC): analysis of its first annual report and international comparison with other established registries

Osteoporosis International, 2019
C. Ojeda-Thies, P. Sáez-López, C. Currie, F. J. Tarazona-Santalbina, T. Alarcón, Angélica Muñoz-Pascual, T. Pareja, P. Gómez-Campelo, N. Montero-Fernández, J. Mora-Fernández, Ricardo Larrainzar-Garijo, E. Gil-Garay, Í. Etxebarría-Foronda, J. Caeiro, A. Díez-Pérez, D. Prieto-Alhambra, D. Prieto-Alhambra, L. Navarro-Castellanos, Á. Otero-Puime, J. González-Montalvo   +19 more
semanticscholar   +1 more source

Patterns of Postictal Abnormalities in Relation to Status Epilepticus in Adults

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Abnormalities on peri‐ictal diffusion‐weighted magnetic resonance imaging (DWI‐PMAs) are well‐established for patients with status epilepticus (SE), but knowledge on patterns of DWI‐PMAs and their prognostic impact is sparse. Methods This systematic review and individual participant data meta‐analysis included observational studies ...
Andrea Enerstad Bolle, Silvana Sarria‐Estrada, Thomas Bonduelle, Bertram Daniel Dynesen, Manuel Toledo, Zhu Chung Che, Kjell Heuser, Anastasios Chatzikonstantinou, Jérôme Aupy, Udaya Seneviratne, Estevo Santamarina Perez, Christoph Patrick Beier   +11 more
wiley   +1 more source

Weighing the impact of evidence in orthopaedic trauma registries: a systematic review of national and international registry data. [PDF]

BMJ Open
George AJ, Ashwood N, Dekker AP, Wilson P, Crawford A, Mukherjee A.   +5 more
europepmc   +1 more source

Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller, Lauren N. Coffey, Shelley R. H. Mockler, Katie M. Laubscher, Carrie M. Stephan, M. Bridget Zimmerman, Katherine D. Mathews   +6 more
wiley   +1 more source

A scoping review of population-based dementia registries: advancing research, care, and policy. [PDF]

Alzheimers Dement
Garland H, Jacobson M, Xu S, Zissimopoulos J.   +3 more
europepmc   +1 more source