Results 81 to 90 of about 25,624,885 (337)

Pathogenic Germline PALB2 and RAD50 Variants in Patients With Relapsed Ewing Sarcoma

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Approximately 10% of patients with Ewing sarcoma (EwS) have pathogenic germline variants. Here, we report two cases: first, a novel germline pathogenic variant in partner and localizer of BRCA2 (PALB2) in a patient with a late EwS relapse. Its impact on homologous recombination is demonstrated, and breast cancer risk is discussed.
Molly Mack   +12 more
wiley   +1 more source

Research data

open access: yes, 2023
Research data for JEP's review.
openaire   +2 more sources

In-the-wild residual data research and privacy [PDF]

open access: yes, 2016
As the world becomes increasingly dependent on technology, researchers endeavor to understand how technology is used, the impact it has on everyday life and the life-cycle and span of digital information.
Blyth, Andrew   +4 more
core  

Improved Outcomes for Older Children, Adolescents, and Young Adults With Neuroblastoma in the Post‐Immunotherapy Era: An Updated Report From the International Neuroblastoma Risk Group

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background We describe clinical and biologic characteristics of neuroblastoma in older children, adolescents, and young adults (OCAYA); describe survival outcomes in the post‐immunotherapy era; and identify if there is an age cut‐off that best discriminates outcomes.
Rebecca J. Deyell   +14 more
wiley   +1 more source

Data services at the academic library: a natural history of horses and unicorns

open access: yesJournal of eScience Librarianship
Objective: Increases in data-intensive research at colleges and universities is driving demand for data services provided by academic libraries. The current work investigates the distribution of library data services, how such services are offered, and ...
Chun Ly   +3 more
doaj   +2 more sources

Research data Sharing Case study: Medical faculty members

open access: yesIranian Journal of Information Processing & Management, 2022
Purpose: Advances in information and communication technologies have facilitated the research and production of large volumes of data, and this has led to a new paradigm in scientific research called the fourth paradigm of science.
Ameneh Soleimani   +2 more
doaj  

Assessing Data Management Support Needs of Bioengineering and Biomedical Research Faculty

open access: yesJournal of eScience Librarianship, 2019
Objectives: This study explores data management knowledge, attitudes, and practices of bioengineering and biomedical researchers in the context of the National Institutes of Health-funded research projects.
Christie A Wiley, Margaret H Burnette
doaj   +1 more source

Research Data Management – Reuse of Research Data

open access: yes, 2019
Presentation slides for the training seminar about the reuse of research data in Research Data Management of the FoDaKo-project: https://fodako ...
openaire   +1 more source

Patient‐Level Barriers and Facilitators to Inpatient Physical Therapy in Adolescents and Young Adults With a Hematological Malignancy: A Qualitative Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Despite their increased risk for functional impairment resulting from cancer and its treatments, few adolescents and young adults (AYAs) with a hematological malignancy receive the recommended or therapeutic dose of exercise per week during inpatient hospitalizations.
Jennifer A. Kelleher   +8 more
wiley   +1 more source

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