Results 81 to 90 of about 26,127,127 (290)

The Data Audit Framework: a toolkit to identify research assets and improve data management in research led institutions [PDF]

, 2008
Although vast quantities of data are being created within higher education, few institutions have formal strategies in place for curating these research outputs in the longterm. Moreover there appears to be a lack of awareness as to exactly what data are
Jones, Sarah, Ross, Seamus, Ruusalepp, Raivo   +2 more
core   +1 more source

Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Families of children with advanced cancer living in poverty experience inferior outcomes including poor parent mental health and worse child quality of life. Household material hardship (HMH: food, housing, transportation, and/or utility insecurity) is a modifiable poverty exposure—and potential intervention target—that ...
Sarah Wright, Morgan A. Paul, Selena Murcia Mendez, Emily Jones, Lucille Lokko, Chelsea Heneghan, Nicholas Purol, Morgan Arnold, Rahela Aziz‐Bose, Colleen A. Kelly, Sandi L. Pruitt, Joanne Wolfe, Kira Bona, Puja J. Umaretiya   +13 more
wiley   +1 more source

Astroinformatics, data mining and the future of astronomical research [PDF]

, 2012
Astronomy, as many other scientific disciplines, is facing a true data deluge which is bound to change both the praxis and the methodology of every day research work.
Giuseppe Longo, Harwit, Massimo Brescia
core   +2 more sources

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim, Natalie Bradford, David Brain, Sameera Senanayake, Sanjeewa Kularatna, Kate Young, Christine Cashion, Tim Hassall, Susanna Cramb   +8 more
wiley   +1 more source

This is my First One: Finding and Building Community at RDAP Summit 2019

Journal of eScience Librarianship, 2019
This commentary depicts the experiences and thoughts of both a first-time attendee to the Research Data Access and Preservation (RDAP) Summit held May 2019 and of a library/data-related conference.
Ateanna Uriri
doaj   +1 more source

A High‐Sensitivity Circulating Nucleic Acid Sequencing Assay for Assessing Treatment Response to Alectinib in a Pediatric Patient With ALK‐Rearranged Non–Small Cell Lung Cancer

Pediatric Blood &Cancer, EarlyView.
Alberto D. Guerra, Nicholas F. Evageliou, Vandana Batra, Kristen L. Dalton, Stephanie Ortel, Usman Ashraf, Tricia R. Bhatti, Lisa J. States, Lea F. Surrey, Theodore W. Laetsch   +9 more
wiley   +1 more source

Die Deutsche Zentralbibliothek für Medizin in Köln und Bonn – Zentrale Fachbibliothek und Infrastruktureinrichtung für die Forschung in der Bundesrepublik Deutschland / The German National Library of Medicine in Cologne and Bonn – National Library and Infrastructure Organisation for Research in the Federal Republic of Germany

GMS Medizin – Bibliothek – Information, 2009
The German National Library of Medicine (ZB MED) is the National Library for Medicine, Health, Nutrition, Environment and Agriculture in the Federal Republic of Germany. Founded 40 years ago, the library developed from a document supplier on the basis of
Korwitz, Ulrich
doaj  

Towards a generic research data management infrastructure [PDF]

, 2010
Until recent years, a focused and centralized strategy for the annotation, storage and curation of research data is something that has not been widely considered within academic communities.
Beard, Lorraine, Besson, Jon, Collins, Simon, Finch, June, Goff, Mhorag, Grahame, Tom, Halfpenny, Peter, McDerby, Mary, Poschen, Meik, Procter, Rob   +9 more
core  

The Dynamics of Research Joint Ventures: A Panel Data Analysis [PDF]

, 2007
The aim of this paper is to test the determinants of Research Joint Ventures’ (RJVs) group dynamics. We look at entry, exit and turbulence in RJVs that have been set up under the US National Cooperative Research Act, which allows for certain antitrust ...
Duso, Tomaso, Pennings, Enrico, Seldeslachts, Jo   +2 more
core   +4 more sources

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee, Holly Evans, Claire E. Wakefield, Antoinette Anazodo, Richard J. Cohn, Brittany C. McGill, Elizabeth A. Lobb, Lori Wiener, Madeleine L. Juhrmann, Ursula M. Sansom‐Daly   +9 more
wiley   +1 more source