Results 81 to 90 of about 74,522,906 (314)

GDPR and health research: stakeholder voices. Data protection and health research - what does the legislation mean for patients, the public and the research community? Report and recommendations. [PDF]

, 2018
This report presents the proceedings of the Irish Health Research Forum on November 14th 2018 focusing on data protection legislation and health research, and the implications for patients, the public and researchers.
Medical Research Charities Group
core  

Safety and Effectiveness of a High‐Dose, Tailored Tissue Plasminogen Activator Therapy Protocol: A Joint Pediatric Hematology and Cardiac ICU Quality Improvement Initiative Analysis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric thromboembolism is increasingly encountered in critical care. Systemic thrombolysis with tissue plasminogen activator (tPA) facilitates vessel or valve patency, yet pediatric‐specific protocols remain undefined, and safety concerns persist. Objective To evaluate the efficacy and safety of a tailored, prolonged systemic tPA
Eran Shostak, Oded Gilad, Yael Feinstein, Sigal Nakav, Ofer Schiller, Joanne Yacobovich   +5 more
wiley   +1 more source

Research Data Management Survey (November-December 2014)

, 2016
CSV file of responses and survey instrument for a research data management survey conducted via Google Forms. The survey was sent to academic staff and PhD students at Sheffield Hallam University between 12 November and 5 December ...
Verbaan, Eddy
core   +1 more source

Global Efforts to Reduce Paediatric Cancer Care Disparities in Radiotherapy: A Decade Change

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background We present an update on the status, needs and challenges faced by paediatric imaging and radiotherapy (RT) programmes globally after a previous survey conducted by the International Atomic Energy Agency (IAEA) 10 years prior. Methods We developed and distributed a 121‐question survey to radiation oncologists, medical physicists and ...
Raymond B. Mailhot Vega, Daniel J. Indelicato, Jeanette Parkes, Natia Esiashvili, Josué Hernández Benítez, Miriam Mikhail‐Lette, Olivera Cirajc Bjelac, Daniel Berger, Eva Ciurana, Yavuz Anacak, Lisbeth Cordero‐Mendez   +10 more
wiley   +1 more source

Special Issue: 2019 Research Data Access and Preservation Summit

Journal of eScience Librarianship, 2020
The Journal of eScience Librarianship has partnered with the Research Data Access & Preservation (RDAP) Association for a second year to publish selected conference proceedings. This issue highlights the research presented at the RDAP 2019 Summit and the
Tina Griffin, Rebekah Kati, Alicia Krzton, Lora Leligdon   +3 more
doaj   +1 more source

To protect and to serve: developing a road map for research data management services

Insights: The UKSG Journal, 2022
Research Data Management (RDM) has become a major issue for universities over the last decade. This case study outlines the review of RDM services carried out at the University of Oxford in partnership with external consultants between November 2019 and ...
Andrea Chiarelli, Neil Beagrie, Lotte Boon, Ruth Mallalieu, Rob Johnson, Amy Warner May, Rowan Wilson   +6 more
doaj   +1 more source

Data literacy in genome research

Journal of Integrative Bioinformatics, 2023
Abstract With an ever increasing amount of research data available, it becomes constantly more important to possess data literacy skills to benefit from this valuable resource. An integrative course was developed to teach students the fundamentals of data literacy through an engaging genome sequencing project.
Katharina Wolff, Ronja Friedhoff, Friderieke Schwarzer, Boas Pucker   +3 more
openaire   +4 more sources

G²LM|LIC - Occupational Health and Safety: The Role of Information and Financial Linkage

, 2023
The intervention was carried out in October 2017. A baseline survey was conducted prior to the intervention in 2017 and two follow-up surveys were carried out in December 2018 and end of 2019.
Xia, Xing, Islam, Asadul, Triyana, Margaret   +2 more
core   +1 more source

Neuropsychological and Educational Outcomes in Shwachman–Diamond Syndrome—A Report From the North American Shwachman–Diamond Syndrome Registry

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Shwachman–Diamond syndrome (SDS) is a rare autosomal recessive ribosomopathy characterized by bone marrow failure and multisystem involvement, with emerging evidence of associated neurocognitive impairment. Methods We conducted a retrospective study of 240 individuals with biallelic Shwachman–Bodian–Diamond syndrome (SBDS) mutations
Jane Koo, Melissa Gerstle, Leah Cheng, Richard Cooper, Katherine Coyne, Claire Dusa, Naomi E. Joffe, Diana Schwarz, Sarah Steltz, Akiko Shimamura, Kasiani C. Myers, Thea Quinton   +11 more
wiley   +1 more source

Roles and jobs in the open research scholarly communications environment: analysing job descriptions to predict future trends

Liber Quarterly: The Journal of European Research Libraries, 2019
During the past two-decades academic libraries updated current staff job responsibilities or created brand new roles.  This allowed them to adapt to scholarly communication developments and consequently enabled them to offer efficient services to their ...
Nancy Pontika
doaj   +1 more source