Results 41 to 50 of about 3,654,793 (292)
Research Data Management Survey 2023 - Report on EPFL [PDF]
Effective Research Data Management (RDM) is a critical aspect of the scientific process, ensuring data and code are well-organized, reproducible, and securely preserved.
Gabella, Chiara, Varrato, Francesco
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Research Data Management Group Strategic Agenda (Fall 2019-Summer 2021): Final Report [PDF]
, 2021 Between Summer Fall 2019 - Summer 2021, Albertsons Library’s Research Data Management Group worked on implementing a strategic agenda. This document is a report of the activities undertaken in response to that plan.
Albertsons Library Research Data Management Team
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Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Children with sickle cell disease (SCD) face multiple acute and chronic medical complications that may impact their quality of life as reported by patients themselves. Health‐related social needs (HRSNs), such as food and housing insecurity, are common in people with SCD, but the association between HRSNs and patient‐reported ...
Sarah J. Marks +5 more
wiley +1 more source
The FAIRness of data management plans: an assessment of some European DMPs
RECIIS, 2021 The FAIR principles have become a data management instrument for the academic and scientific community, since they provide a set of guiding principles to bring findability, accessibility, interoperability and reusability to data and metadata stewardship.
Patricia Henning +4 more
doaj +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Primary cutaneous anaplastic large cell lymphoma (pcALCL) is a rare pediatric CD30‐positive T‐cell lymphoproliferative disorder with an excellent prognosis, but its genomic drivers are poorly defined. We report three children with skin‐limited disease demonstrating striking molecular heterogeneity, including NPM::ALK, NUP214::FRK, and a novel ...
Shoshana Greenberger +7 more
wiley +1 more source
Engaging Researchers with Data Management
, 2019 Effective Research Data Management (RDM) is a key component of research integrity and reproducible research, and its importance is increasingly emphasised by funding bodies, governments, and research institutions around the world. However, many researchers are unfamiliar with RDM best practices, and research support staff are faced with the difficult ...
Clare, Connie +7 more
openaire +5 more sources
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Fertility preservation (FP) is increasingly integrated into the care of pediatric patients exposed to gonadotoxic therapy or conditioning for hematopoietic stem cell transplantation (HSCT), yet perioperative data in infants and toddlers remain scarce.
Kerstin Saalabian +13 more
wiley +1 more source
Research Data Management in the Croatian Academic Community: A Research Study
PublicationsThis paper presents the results of an empirical research study of Croatian scientists’ use and management of research data. This research study was carried out from 28 June 2023 until 31 August 2023 using an online questionnaire consisting of 28 ...
Radovan Vrana
doaj +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Central nervous system (CNS) neuroblastoma, FOXR2‐activated, is a recently recognized entity in the WHO CNS5 classification, defined by activation of the FOXR2 transcription factor and unique histopathological features. This review synthesizes available literature and pooled clinical data, providing insight into demographics ...
Sudarshawn Damodharan +1 more
wiley +1 more source
Data Management and Sharing Plan for: Development of the research project management module of the HIRC system (HIRConnect) [PDF]
The Data Management and Sharing Plan describes the scientific data to be generated and/or used in the research and outlines a strategy for managing and sharing project ...
Wu, Tzu-Yu
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