Respite care models and practices for persons with intellectual disability: A scoping review [PDF]
African Journal of Disability, 2023 Background: Families are the primary caregivers for persons with intellectual disability (ID), offering informal support to ensure community living. Ensuring families are adequately supported is key to reduce the financial, physical, mental and social ...
Toni Abrahams, Sharon Kleintjes
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Respite care: qualitative arts-based findings on the perspectives and experiences of families of children and youth with special healthcare needs residing in Manitoba, Canada [PDF]
BMJ Open, 2023 Objectives Respite for families of children and youth with special healthcare needs (CYSHCN) is essential for sustaining a family care environment. Lacking is an understanding of families’ respite experiences who reside in Canada. We sought to understand
Krista Keilty +4 more
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The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study [PDF]
BMC Palliative Care, 2022 Background Respite care provides caregiving support to people with amyotrophic lateral sclerosis (ALS) and their care partners by providing the care partner with temporary relief from their caregiving duties.
Julia M. Wu +10 more
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Information and Communication Technologies to Support the Provision of Respite Care Services: Scoping Review [PDF]
JMIR Nursing, 2023 BackgroundRespite care is one of the most frequently requested support services by family caregivers. Yet, too often, respite care services are inaccessible, due in part to families’ lack of knowledge regarding available services ...
Aimee R Castro +11 more
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Healthcare and social care professionals’ experiences of respite care: a critical incident study [PDF]
International Journal of Qualitative Studies on Health & Well-BeingIntroduction Aging in place is favoured among older persons and supported by research in Sweden, although it poses challenges for overburdened informal caregivers.
Annelie K. Gusdal +4 more
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Overall survival of homebound patients without cancer receiving inpatient respite care in a hospital ward in Japan: a retrospective observational study [PDF]
BMJ OpenObjectives This study aimed to investigate the relationship between the use of inpatient respite care and the overall survival of homebound patients without cancer admitted to a hospital ward in order to assess the potential impact of inpatient respite ...
Yuko Goto, Hisayuki Miura
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Challenges and recommendations for advancing respite care for families of children and youth with special health care needs: A qualitative exploration [PDF]
Health ExpectationsIntroduction Caring for children and youth with special health care needs (CYSHCN) is a significant undertaking for families. While respite care is intended to address this burden, demand continues to exceed supply.
Roberta L. Woodgate +3 more
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Parents’ experiences of accessing respite care for children with Autism Spectrum Disorder (ASD) at the acute and primary care interface: a systematic review [PDF]
BMC Pediatrics, 2020 Background Population prevalence estimates by the World Health Organisation suggest that 1 in 160 children worldwide has an Autism Spectrum Disorder (ASD).
Emma Cooke, Valerie Smith, Maria Brenner
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JMIR Research Protocols, 2021 BackgroundPatients living with palliative-stage cancer frequently require intensive care from their family caregivers. Without adequate community support services, patients are at risk of receiving inadequate care, and family ...
Aimee R Castro +5 more
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Post-hospital medical respite care for homeless people in Denmark: a randomized controlled trial and cost-utility analysis [PDF]
BMC Health Services Research, 2020 Background Being homeless entails higher mortality, morbidity, and prevalence of psychiatric diseases. This leads to more frequent and expensive use of health care services.
Camilla Bring +6 more
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