ABSTRACT Objective Spinal muscular atrophy (SMA) significantly impacts motor function. This study aimed to assess the persistent burden and unmet needs among currently treated patients with SMA and their caregivers. Methods Two complementary web‐based surveys were distributed in August 2024 among patients with SMA and their caregivers.
Julie A. Parsons+8 more
wiley +1 more source
QUADAS e STARD: avaliação da qualidade de estudos de acurácia de testes diagnósticos
OBJETIVO: Comparar duas abordagens baseadas em critérios do Quality Assessment of Diagnostic Accuracy Studies (QUADAS) e do Standards for Reporting Studies of Diagnostic Accuracy (STARD) na avaliação de qualidade de estudos de validação do teste rápido ...
Maria Regina Fernandes de Oliveira+2 more
doaj
Research synthesis in behavior analysis I: An introductory guide to conducting systematic reviews. [PDF]
Weinsztok SC, Amlung M.
europepmc +1 more source
Digital Activity Markers in Chronic Inflammatory Demyelinating Polyneuropathy
ABSTRACT Objective To evaluate the utility of smartwatch and smartphone‐based activity metrics for assessing disease severity and quality of life in patients with chronic inflammatory demyelinating polyneuropathy (CIDP). Methods In the electronic monitoring of disease activity in patients with CIDP (EMDA‐CIDP) trial, we performed a prospective ...
Lars Masanneck+15 more
wiley +1 more source
Review of Recent Literature on Flow Chemistry. Selected Topic: Sustainability
Benjamin Martin, Agnieszka Ladosz
openaire +4 more sources
How May International Trade affect Poverty in a Developing Country Setup? The Inequality Channel [PDF]
Recently there has been an influx of literature which tries to find out relationship between trade and poverty. Right is of the view that more international trade is good for the poor whereas left is quite skeptical of pro poor effects of trade.
Mamoon, Dawood
core +1 more source
Introducing CRIS-A unified framework for systematic literature searches across disciplines. [PDF]
Ciemer C+3 more
europepmc +1 more source
Multimodal Autonomic Biomarkers Predict Phenoconversion in Pure Autonomic Failure
ABSTRACT Background Pure autonomic failure (PAF) presents with autonomic failure without other neurological features. A third develop central neurological features, fulfilling criteria for multiple system atrophy (MSA) and Lewy body diseases (LBD), including Parkinson's disease and Dementia with Lewy bodies.
S. Koay+12 more
wiley +1 more source
Dollarization as a monetary arrangement for emerging market economies [PDF]
Official dollarization refers to the adoption of the U.S. dollar as legal tender in place of the national currency. Some Latin American countries have recently dollarized, and others have seriously considered dollarization.
Gaetano Antinolfi, Todd Keister
core
Current understanding and theories of wellbeing washing in the context of workplace health and wellbeing: A scoping review protocol. [PDF]
Ryan É+3 more
europepmc +1 more source