Results 31 to 40 of about 2,855,386 (298)

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen   +23 more
wiley   +1 more source

How COVID has Illuminated the Pitfalls of a Single-Payer System in the US

open access: yesMarshall Journal of Medicine, 2020
Health care quality measures are impacted by resources invested into outcomes. COVID-19 has had a direct impact upon quality outcomes, the same illuminating just some of the problems with the concept of a single-payer health care system.
Tamela J. White, Nicholas Wright
doaj   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

A comparison of five multi attribute utility instruments [PDF]

open access: yes, 2003
This paper presents the results of the validation study carried out to evaluate the Assessment of Quality of Life (AQoL) Instrument for the measurement of health related quality of life and utility.
Jeff Richardson   +5 more
core  

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker   +11 more
wiley   +1 more source

An integrated and sustainable EU health information system: national public health institutes’ needs and possible benefits

open access: yes, 2017
<p><strong>BACKGROUND:</strong></p> <p><strong>Although sound data and health information are at the basis of evidence-based policy-making and research, still no single, integrated and sustainable EU-wide public health
for Bridge Health   +2 more
core   +1 more source

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook   +6 more
wiley   +1 more source

Abordagem psicológica na atenção básica em saúde: da fragmentação à integralidade

open access: yesRevista Brasileira de Educação Médica
A Estratégia Saúde da Família tem sido a principal resposta de organização do cuidado perante os atendimentos médicos de visão biologicista, hospitalocêntricos e voltados para ações curativas.
Ricardo Corrêa Ferreira   +2 more
doaj   +1 more source

CONCEPTION OF INFORMATIZATION OF HEALTH CARE OF UKRAINE

open access: yesMedična Informatika ta Inženerìâ, 2012
Conception determines the general basis of health system informatization, its aim, principles, general architecture, basic stages and its program.  Also there is described the logic of creation and structure of the state single health informational ...
O. P. Mintser   +8 more
doaj   +1 more source

Racial Disparity in Referral for Catheter Ablation for Atrial Fibrillation at a Single Integrated Health System

open access: yesJournal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, 2022
Background Guidelines recommend catheter ablation of atrial fibrillation (AFCA) as an option for rhythm control. Studies have shown that Black patients are less likely to undergo AFCA compared with White patients.
Jessica M. Duke   +6 more
doaj   +1 more source

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