Results 151 to 160 of about 11,789,734 (234)

The International Consortium for Arthrogryposis: A Collaborative Framework for Early Detection, Care, Research, and Education

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Arthrogryposis multiplex congenita (AMC) is a group of rare congenital conditions, characterized by multiple joint contractures but may involve any body system including central nervous system. AMC is etiologically heterogeneous, with over 400 genetic and many non‐genetic causes implicated in its prenatal development.
Shahrzad Nematollahi, Noa Bouzaglo, Victoria Castillo Sanchez, Johanna I. P. de‐Vries, Klaus Dieterich, Alicja Fafara, Isabel Filges, Philip Giampietro, Göknur Haliloğlu, Judith Hall, Coleman Hilton, Remco Jansen, Valentina Maestri, Carolina Navalon, Daniel Natera de Benito, Tony Pan, Ani Samargian, Bonita Sawatzky, Harold van Bosse, Paul A. Trainor, Noémi Dahan‐Oliel   +20 more
wiley   +1 more source

Enhanced Recovery Protocol Post-TBI (ERA-TBI): Factors Determining Morbidity and Mortality. [PDF]

Neurol Res Int
O'Byrne GP, Sankar S, Sharma S, Beniameen D, Ramachandran A, Raziq SA.   +5 more
europepmc   +1 more source

Participatory Policy Development: Reflections on Designing the Strong Roots for Our Futures Program in Victoria

Australian Journal of Social Issues, EarlyView.
ABSTRACT In this paper, we trace the journey to create the Strong Roots for our Futures Program, a government program to resource and support Traditional Owners to undertake a range of activities in areas where no state recognition existed. We provide a background to state recognition in Victoria before considering the program design, leading to an ...
Nell Reidy, Bhiamie Williamson, Jesse Williams   +2 more
wiley   +1 more source

Indirect mobilisation and violence legitimation through influencers on alternative platforms. [PDF]

Br J Soc Psychol
Wischerath D, Brown O, Piwek L, Davidson BI.   +3 more
europepmc   +1 more source

Implementing Indigenous Data Sovereignty in Australia: A Five‐Phase Framework for Indigenous Data Governance

Australian Journal of Social Issues, EarlyView.
ABSTRACT This article presents the development of a five‐phase Indigenous Data Governance (IDGov) Framework in Australia, focusing on partnerships between the Aboriginal Community Controlled Health Organisation (ACCHO) sector and non‐Indigenous health entities.
Jacob Prehn, Michael A. Guerzoni, Maggie Walter, Gawaian Bodkin‐Andrews, Bobby Maher   +4 more
wiley   +1 more source

Community engagement and involvement in Sri Lanka: a knowledge mobilisation case study. [PDF]

Res Involv Engagem
Wimalasekera M, Blackburn S, Arachchi RW, Jayasinghe C, Guruge GND, Higginbottom A, Jayasinghe OS, Jabir S, Samarakkody V, Opatha J, Dissanayake L, Jayaweera K, Wickramasinghe E, Hewamalage A, Fernando B, Alwis S, Kodituwakku G, Abeysinghe N, Zavos H, Dziedzic K, Sumathipala A.   +20 more
europepmc   +1 more source

Australian Activists as Storytellers in Digital Spaces: Acquiring Skills, Producing Content and Getting the Message Out

Australian Journal of Social Issues, EarlyView.
ABSTRACT As modes of activism rapidly evolve, activists—both seasoned and emerging—must increasingly navigate a hybrid terrain of both digital and non‐digital engagement. This paper draws on the personal narratives of 16 nascent activists based in Australia to explore how they develop competencies related to digital storytelling, which is critical to ...
Garth Stahl, Miri Yemini, Claire Maxwell, Yating Hu, Benjamin Adams, Sarah Bergen   +5 more
wiley   +1 more source

Examining Data-Driven Approaches for Clean Air Advocacy in a Changing Climate: a Scoping Review. [PDF]

Curr Environ Health Rep
Okello G, Kizza FG, O'Sullivan N, Tatah L, Oni T.   +4 more
europepmc   +1 more source

Intensified Manufactured Non‐Belonging: Working Holiday Makers in Australia During the COVID‐19 Pandemic

Australian Journal of Social Issues, EarlyView.
ABSTRACT Nations manufacture non‐belonging of temporary migrants through policy frameworks that produce exclusion. This precarity maximises the economic benefit of temporary migrant labour by minimising their political, social and legal rights. In this paper, we examine how non‐belonging targeting Working Holiday Makers (WHMs) is manufactured in ...
Donna James, Alanna Kamp
wiley   +1 more source

Key principles for rehabilitation of critically ill patients with obesity. [PDF]

Intensive Care Med
Eggmann S, Bear DE, Bourne RS, Freeman-Sanderson A, Hickmann CE, Karner V, McWilliams D, Needham DM, Singer P, van Mol M, van Zanten A, Hodgson CL, Schaller SJ.   +12 more
europepmc   +1 more source