Results 111 to 120 of about 2,911 (242)

Medicine Development and Access for Rare Diseases: Can We Do Better? [PDF]

open access: yesJ Inherit Metab Dis
Hollak CEM   +14 more
europepmc   +1 more source

Becoming resilient: Community‐driven change and the civic capacity index

open access: yesAmerican Journal of Community Psychology, EarlyView.
Abstract One of the principal features of successful community governance is that it is collaborative and thus dependent on a community's ability to work together. However, there are no valid, comprehensive means to assess a community's capacity to respond to civic challenges in collaborative ways, and that are predictive of community resilience and ...
David MacPhee   +2 more
wiley   +1 more source

The Made‐in‐Africa Evaluation framework: A decolonial approach to program evaluation

open access: yesAmerican Journal of Community Psychology, EarlyView.
Abstract The Made in Africa Evaluation (MAE) framework is a decolonial approach to program evaluation developed by African evaluators over the past 14 years. MAE may be appropriate to community psychologists who practice program evaluation or conduct research in Africa, but little is known about its implementation.
Takatso Sibanda, Robin Lin Miller
wiley   +1 more source

Mental Health Stigma in Psychiatric Genetics: Insights and Recommendations From the ISPG Member Survey on Stigma

open access: yesAmerican Journal of Medical Genetics Part B: Neuropsychiatric Genetics, EarlyView.
ABSTRACT Little is known about how stigma is perceived within psychiatric genetics, a field increasingly central to public discussions about heredity, neurodiversity, and psychiatric risk. Understanding how stigma is perceived and experienced by psychiatric geneticists is important for guiding responsible communication and future stigma‐reduction ...
Anaïs B. Thijssen   +14 more
wiley   +1 more source

The EXPLAIN Study: Exploring Arthrogryposis Multiplex Congenita in Adults in Norway — A Description of Demographic, Medical, and Neurological Findings

open access: yesAmerican Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Arthrogryposis Multiplex Congenita (AMC) encompasses several hundred conditions with diverse genetic, pathophysiological, and clinical origins. The overarching EXPLAIN study explores underlying causes and implications of AMC and represents the largest clinical cohort of adults with AMC reported to date.
My Vuong Hermansen   +5 more
wiley   +1 more source

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