Results 61 to 70 of about 443,512 (297)

Demographic factors, partial social belonging and psychological resources associated with coping

Frontiers in Psychology, 2023
IntroductionThe present study investigates the role of perceived partial social belonging (PPSB) in determining societal and individual resilience and positive and negative coping indicators.
Yohanan Eshel, Yohanan Eshel, Shaul Kimhi, Hadas Marciano, Hadas Marciano, Bruria Adini, Bruria Adini   +6 more
doaj   +1 more source

Germline TP53 Mutations Causing Diamond–Blackfan Anemia: A French Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Diamond–Blackfan anemia is a rare congenital erythroblastopenia typically caused by mutations in ribosomal protein genes. Recently, gain‐of‐function mutations in TP53 have been identified as a novel cause of Diamond–Blackfan anemia. We report two French patients who both harbored a heterozygous TP53 deletion (NM_000546.5: c.1077delA; p ...
Rafael Moisan, Lydie Da Costa, Ludivine David Nguyen, Heloise Chosseler, Audrey Riquet, Benedicte Bruno, Melissa Barbati   +6 more
wiley   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee, Holly Evans, Claire E. Wakefield, Antoinette Anazodo, Richard J. Cohn, Brittany C. McGill, Elizabeth A. Lobb, Lori Wiener, Madeleine L. Juhrmann, Ursula M. Sansom‐Daly   +9 more
wiley   +1 more source

Building consensus on societal wellbeing: a semantic synthesis of indicators to move beyond GDP

Ecological Indicators
To achieve sustainable wellbeing for both humanity and the rest of nature, we must shift from a narrow focus on Gross Domestic Product (GDP) to a broader understanding and measurement of sustainable wellbeing and prosperity within the planetary ...
Ida Kubiszewski, Robert Costanza, Joseph Eastoe, Tianchu Lu, Kenneth Mulder, Grover Patteson Hernandez, Péter Benczûr, Sandrine Dixson-Dectéve   +7 more
doaj   +1 more source

Field investigations and multi‐indicators for shallow water lagoon management: perspective for societal benefit [PDF]

Aquatic Conservation: Marine and Freshwater Ecosystems, 2011
ABSTRACT Abiotic and biotic variables of coastal lagoons are highly heterogeneous in both space and time, and this heterogeneity complicates the assessment of their ecological status. These variables are essential to the monitoring and preservation of these fragile ecotones and the resources and services they sustain.
Brehmer, Patrice, Do Chi, Thang, Laugier, Thierry, Galgani, François, Laloë, Francis, Darnaude, Audrey, Fiandrino, Annie, Mouillot, David   +7 more
openaire   +5 more sources

Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care Teams

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Early integration of pediatric palliative care (PPC) is associated with improved symptom management, quality of life, and healthcare utilization for children with cancer. Despite this, variation persists in how PPC is understood, operationalized, and integrated within pediatric oncology programs. In particular, ambiguity surrounding
Leeat Granek, Lori Wiener, Stephanie Veldhuijzen van Zanten, Donna Johnston, Fyeza Hasan, Adam Rapoport, Nathasha Datoo, Kimberley Widger, Sumit Gupta, Karen Fergus, Anthony K. C. Chan, Alisha Kassam, Emily McCullogh, Dave Lysecki   +13 more
wiley   +1 more source

Conceptualising the societal value of health and wellbeing and developing indicators for assessment [PDF]

European Journal of Public Health, 2015
Background Contemporary health promotion interventions commonly adopt community-based approaches to address health and social problems. Evaluating their outcomes is challenging because of the complex and reciprocal relationship between individual behaviour and wider environmental factors. It is important for public health organisations to understand
C Baker, P Courtney
openaire   +1 more source

Feasibility and Preliminary Efficacy of Integrative Neuromuscular Training for Childhood Cancer Survivors: A Pilot Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Survivors of childhood acute lymphoblastic leukemia (ALL) often exhibit early deficits in muscle and movement competence, which can compromise long‐term health. Integrative neuromuscular training (INT), a multifaceted approach combining fundamental movement activities with strength exercises, may help address these deficits during ...
Anna Maria Markarian, Robert U. Newton, Dennis R. Taaffe, Nicholas G. Gottardo, Santosh Valvi, Carolyn J. Peddle‐McIntyre, Jodie Cochrane Wilkie, Daniel A. Galvão   +7 more
wiley   +1 more source

Does the public discuss other topics on climate change than researchers? A comparison of explorative networks based on author keywords and hashtags

, 2019
Twitter accounts have already been used in many scientometric studies, but the meaningfulness of the data for societal impact measurements in research evaluation has been questioned.
Bornmann, Lutz, Haunschild, Robin, Hellsten, Iina, Leydesdorff, Loet, Marx, Werner   +4 more
core   +1 more source