Closing the rural diabetes research gap: a case for coordinated international collaboration. [PDF]
Murfet G +10 more
europepmc +1 more source
Development of a Disease Activity Index for the Assessment of VEXAS Syndrome (VEXAS‐DAI)
Objective Vacuoles, E1 enzyme, X‐linked, autoinflammatory, somatic syndrome (VEXAS) syndrome is characterized by a complex spectrum of inflammatory and hematologic manifestations. Clinical research to identify effective therapies is urgently needed but is hindered by the lack of validated outcome measures.
Kevin Byram +25 more
wiley +1 more source
High-intensity treatment is common at the end of life among children and young people who died of cancer: a retrospective cohort study. [PDF]
Jarvis S +7 more
europepmc +1 more source
Caregiver Perspectives on the Burden of Disease and Treatment in Uncontrolled Gout
Objective Uncontrolled gout (UG) refers to persistently elevated serum urate (SU) levels >6 mg/dL and ongoing gout symptoms despite use of urate‐lowering therapy (ULT). The objective of this study was to evaluate the burden associated with informal caregiving for individuals with UG.
Angelo Gaffo +6 more
wiley +1 more source
Co-Designing a Care Coordination Intervention for People With Motor Neuron Disease: Protocol for a Mixed Methods Study. [PDF]
Waters-Harvey B +17 more
europepmc +1 more source
TeleKap-Supported Intracerebral Haemorrhage Care in Slovenia: Organisational Framework, Potential Benefits, and Evidence Gaps. [PDF]
Velnar T +6 more
europepmc +1 more source
A Novel <i>SLC25A4</i> Variant Causing Mitochondrial Dysfunction, Myopathy and Cardiomyopathy: A Functional and Molecular Characterization. [PDF]
Aldosary M +18 more
europepmc +1 more source
Genetic testing practices among specialist physicians who treat prostate cancer Updated survey of Canadian practitioners. [PDF]
Yip SM +20 more
europepmc +1 more source
Managing multimorbidity in severe asthma: comparison of resources and perspectives between severe asthma specialists and general respiratory physicians across Europe. [PDF]
Matīsa D +65 more
europepmc +1 more source
Variation in capability, organisational structure, and treatment processes for critically ill adults with moderate-to-severe traumatic brain injury in Australia and New Zealand. [PDF]
Taylor JD +24 more
europepmc +1 more source

