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A 2019 global update on folic acid‐preventable spina bifida and anencephaly

Birth Defects Research, 2020
Mandatory folic acid fortification of staples is a proven intervention to prevent spina bifida and anencephaly, two life‐threatening and disabling neural tube defects.
V. Kancherla   +3 more
semanticscholar   +1 more source

Randomized Clinical Trial Using Sterile Single Use and Reused Polyvinylchloride Catheters for Intermittent Catheterization with a Clean Technique in Spina Bifida Cases: Short-Term Urinary Tract Infection Outcomes.

Journal of Urology, 2019
PURPOSE Urinary tract infections are common and severe complications in patients with spina bifida. Management includes intermittent bladder catheterization with single use or reused sterile catheters.
P. A. Madero-Morales   +6 more
semanticscholar   +1 more source

Transition Readiness Assessment Questionnaire Spina Bifida (TRAQ-SB) specific module and its association with clinical outcomes among youth and young adults with spina bifida

Journal of Pediatric Rehabilitation Medicine, 2019
PURPOSE: In order to transition to adulthood and independence, youth with spina bifida must assume significant self-management responsibilities including monitoring for shunt malfunction, maintaining intact skin in areas that are insensate, and ...
D. Wood   +4 more
semanticscholar   +1 more source

A 2017 global update on folic acid-preventable spina bifida and anencephaly.

Birth Defects Research, 2018
BACKGROUND Spina bifida and anencephaly are largely preventable birth defects through mandatory folic acid fortification. Our objective was to estimate the proportion of folic acid-preventable spina bifida and anencephaly (FAP SBA) prevented worldwide ...
V. Kancherla   +3 more
semanticscholar   +1 more source

Co-morbidities Associated With Early Mortality in Adults With Spina Bifida

American Journal of Physical Medicine & Rehabilitation, 2018
Objective The aims of this quality improvement project were to identify secondary conditions and medical co-morbidities in adult patients with spina bifida and to determine which factors were associated with an earlier age of death.
B. Dicianno   +3 more
semanticscholar   +1 more source

Bowel management in children with spina bifida

Journal of Pediatric Rehabilitation Medicine, 2018
Spina bifida is a birth defect that commonly causes bowel and bladder dysfunction in children with a significant negative impact on quality of life and emotional wellbeing.
L. Ambartsumyan, Leonel Rodriguez
semanticscholar   +1 more source

The National Spina Bifida Patient Registry: A Decade's journey

Birth Defects Research, 2018
The National Spina Bifida Patient Registry (NSBPR) was established in 2008, as a partnership between the CDC and spina bifida (SB) clinics throughout the United States.
J. Castillo   +4 more
semanticscholar   +1 more source

Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.

Disability and Health Journal, 2020
B. Dicianno   +7 more
semanticscholar   +1 more source

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