Results 21 to 30 of about 33,787 (164)
Selection for Treatment in Spina Bifida Cystica [PDF]
This paper discusses (1) the mortality in 295 patients with myelomeningocele born 1961-9, (2) the "quality of life" of 88 surviving patients born 1961-5, and (3) their implications for selection for treatment in spina bifida cystica. Evidence is presented that high neurological levels, the presence of severe hydrocephalus, especially if present at ...
G K, Smith, E D, Smith
openaire +2 more sources
Lifestyle in adults aged 35 years who were born with open spina bifida: prospective cohort study. [PDF]
BACKGROUND AND METHODS: From 1963 to 1971, 117 babies with open spina bifida were treated non-selectively from birth. In 2002 we reviewed all the survivors by postal questionnaire and telephone call.
Oakeshott Pippa +5 more
core +1 more source
Transition into adult healthcare services in Scotland –findings from a study concerning service users at the Scottish Spina Bifida Association [PDF]
Background and Aims Literature on interventions that enable young people with Spina Bifida and/or Hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members ...
Wynd , Andrew H D +4 more
core +1 more source
Abstract Background There are approximately 1 billion people in the world with some form of disability. This corresponds to approximately 15% of the world's population (World Report on Disability, 2011). The majority of people with disabilities (80%) live in low‐ and middle‐income countries (LMICs), where disability has been shown to disproportionately
Ashrita Saran +2 more
wiley +1 more source
Prevalence of Spina Bifida among Newborns in Africa: A Systematic Review and Meta‐Analysis
Spina bifida is an abnormal closure of the neural tube during the fourth week of development. It is the major cause of fetal loss and considerable disabilities in newborns. The aim of this review is to determine the pooled prevalence of spina bifida among newborns in Africa.
Mohammed Oumer +4 more
wiley +1 more source
LucasFidon/spina-bifida-MRI-atlas: Paper submission
This is the version of the code that was used to compute the first version of the fetal brain atlas for spina bifida aperta https://www.synapse.org/#!Synapse:syn25887675/wiki ...
Lucas Fidon
core +1 more source
Treatment of spina bifida cystica as used at the Queen Elizabeth Hospital for children London E2
No abstract available.
Janice Behr
doaj +1 more source
Walking and living independently with spina bifida: a 50‐year prospective cohort study
Aim To describe trends in walking and living independently in a cohort of consecutive cases of spina bifida, followed‐up over 50 years. Method From 1972 to 2017, a cohort of 117 (born 1963–1971, 50 males, 67 females) survivors and/or carers was surveyed approximately every 5 years by clinical examination and/or postal questionnaire/telephone interview.
Pippa Oakeshott +3 more
wiley +1 more source
Objective. The purpose of this study was to describe baseline data on etiological, clinical, laboratory, and management strategies in Kenyan children and adolescents with Disorders of Sex Development (DSD). Methods. This retrospective study included patients diagnosed with DSD who presented at ages 0–19 years from January 2008 to December 2015 at the ...
Prisca Amolo +4 more
wiley +1 more source
"I Like to Play with My Friends": Children with Spina Bifida and Belonging in Uganda [PDF]
This paper describes experiences of living and belonging from the perspectives of Ugandan children with spina bifida and their siblings and parents.
Idro, Richard +7 more
core +1 more source

