Results 191 to 200 of about 67,777 (307)

A Retrospective Cohort Study of Nutrition Outcomes in Children With Spinal Muscular Atrophy Type 1 and 2 Treated With Disease Modifying Therapies

open access: yesMuscle &Nerve, EarlyView.
ABSTRACT Introduction/Aims Few studies have investigated nutrition as a primary outcome of disease modifying therapy (DMT) in spinal muscular atrophy (SMA). This study aimed to describe nutrition outcomes of DMT in children with SMA 1 and 2. Methods Children ≤ 18 years old with SMA 1 or 2 treated with DMTs, and untreated children with SMA 1 were ...
Katie O'Brien   +5 more
wiley   +1 more source

Embedding Palliative Care Clinicians in ALS Teams Improves ALS Clinicians' Confidence in Their Patient Management and Satisfaction With Palliative Care

open access: yesMuscle &Nerve, EarlyView.
ABSTRACT Introduction/Aims Specialty palliative care (SPC) can improve symptoms and well‐being for people living with ALS. Few studies capture how ALS clinicians utilize or are impacted by SPC. We sought to understand how the presence of SPC clinicians on ALS teams impacts ALS clinicians' referrals to and satisfaction with SPC.
Astrid Grouls   +8 more
wiley   +1 more source

Back to the Mission. Revisiting Slack in Nonprofits and Introducing Tappable Slack

open access: yesNonprofit Management and Leadership, EarlyView.
ABSTRACT This article contributes to and develops the previous literature on excess resources (“slack”) in nonprofit organizations through a conceptual analysis of the implications that the organizational distinctiveness of nonprofits carries for our understanding of slack in these organizations.
Marta Reuter   +2 more
wiley   +1 more source

Consensus‐Based Safety Recommendations for Informal Home Care: A Mixed Methods Study

open access: yesResearch in Nursing &Health, EarlyView.
ABSTRACT As home‐based care expands globally, informal caregivers are responsible for medical and nursing responsibilities, raising serious concerns about safety and risk management. This study proposes expert‐informed, safety recommendations tailored to informal caregiving in home settings.
Nida Abed   +9 more
wiley   +1 more source

Mitigating Health Disparities Through Empathetic Policymaking During Times of Crisis

open access: yesPublic Administration and Development, EarlyView.
ABSTRACT The COVID‐19 pandemic greatly exacerbated the existing disparities and inequities in health and healthcare among historically marginalized populations. Today, these impacts still echo. These persistent structured inequities erode the public's trust in government, lead to failure in public policies, and result in worse health consequences ...
Yali Pang   +2 more
wiley   +1 more source

Why Active Representation Varies: Cultural Stereotypes and Differential Treatment by Street‐Level Bureaucrats

open access: yesPublic Administration and Development, EarlyView.
ABSTRACT How do cultural stereotypes influence the likelihood that minority street‐level bureaucrats (SLBs) will actively represent marginalized subgroups within their ethnocultural community? While existing scholarship on representative bureaucracy has focused on the conditions under which minority SLBs engage in active representation, this study ...
Sohad Amaria, Einat Lavee, Nissim Cohen
wiley   +1 more source

Developing a Pediatric Pain Curriculum for Pediatric Anesthesia Fellows in Sub‐Saharan Africa: A Delphi Study

open access: yesPediatric Anesthesia, EarlyView.
ABSTRACT Background Comprehensive pain management in children requires a specialized skillset, with a limited number of clinicians possessing the level of expertise required to successfully navigate the complexities of holistic care. The emergence of pediatric anesthesia fellowship programs in sub‐Saharan Africa presents an opportunity to embed a ...
Anisa Bhettay   +24 more
wiley   +1 more source

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