Results 41 to 50 of about 2,868,112 (314)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Specialty care for patients with epilepsy must become standard of care

, 1999
Epilepsy is a complex, common disorder with severe consequences for patients. The authors believe that a significant percentage of patients are receiving suboptimal care.
The Promotion of Speciality Care for Epilepsy Group,, Dasheiff, R.M.   +1 more
core   +1 more source

Clinical and Biological Features of Response in Resistant Neuroblastoma to 131I‐Metaiodobenzylguanidine Radiotherapy in the Anti‐GD2 Immunotherapy Era

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background 131I‐metaiodobenzylguanidine (131I‐MIBG) radiotherapy is a key treatment for relapsed and refractory (R/R) neuroblastoma (NB). Patients with R/R disease treated in the modern era are increasingly exposed to anti‐GD2 immunotherapy, which exerts selective pressure and may modify both tumor cell state and microenvironment.
Benjamin J. Lerman, Katherine K. Matthay, Fabienne Hollinger, Catriona Black, Ann A. Lazar, Miguel Pampaloni, Steven G. DuBois, Kieuhoa T. Vo   +7 more
wiley   +1 more source

Speaking valves as part of standard care with tracheostomized mechanically ventilated patients in intensive care unit

, 2015
We recently reported on tracheostomy-related outcomes comparing 2 consecutive years before (2011) and after (2012) the introduction of an inline tracheostomy speaking valve (SV) into practice in a primarily cardiothoracic intensive care unit (ICU) [1 ...
Sutt, Anna-Liisa, Fraser, John F, Fraser, John F.   +2 more
core   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Representación formal de la correlación entre las etapas del ciclo vital y la agencia de autocuidado

ENE. Revista de Enfermería, 2016
Un proceso vital propio de las personas es el desarrollo. Según éste se produce, se adquieren las competencias necesarias para la realización de acciones de cuidado que permitirán el mantenimiento de la vida.
Florentino Nieto Franco
doaj  

The SASOP/PsychMg child and adolescent attention-deficit/hyperactivity disorder guidelines

South African Journal of Psychiatry
No Abstract ...
Brendan Belsham, Linda Kelly, Renata Schoeman   +2 more
doaj   +1 more source

Patient and Caregiver Perspectives on Care-Seeking During a Vaso-Occlusive Crisis in Sickle Cell Disease: Results from Qualitative Interviews in Canada

Patient Preference and Adherence, 2023
Neha Durgam,1 Triza Brion,1 Hannah B Lewis,1 Biba Tinga,2 Wilson Sanon,3 Mark Lundie,4 Chantal Cadieux4 1ICON Plc, Raleigh, NC, USA; 2Sickle Cell Disease Association of Canada (SCDAC), Toronto, ON, Canada; 3Association d’Anémie Falciforme du Québec ...
Durgam N, Brion T, Lewis HB, Tinga B, Sanon W, Lundie M, Cadieux C   +6 more
doaj  

Anaesthesia provider′s perception of law: Focus on preventive measures

Indian Journal of Anaesthesia, 2015
Anaesthesiology is a speciality that delivers most prompt and positive results in medical field. This naturally leads to high expectations among the general public.
Joginder Pal Attri, Shakil Momin, Gagandeep Kaur, Kulwinder Singh Sandhu, Neeru Bala, S S Channa   +5 more
doaj   +1 more source

Comparison of a Point-of-Care FilmArray Test to Standard-of-Care Microbiology Test in Diagnosis of Healthcare Associated Infections in a Tertiary Care Pediatric Intensive Care Unit

Antibiotics, 2022
Background: Rapid and accurate identification of healthcare associated pathogens is crucial for early diagnosis and treatment of infections. This study aimed to assess the performance of a point-of-care multiplex polymerase chain reaction (PCR) in ...
Ahmed A. El-Nawawy, Manal A. Antonios, Medhat E. Tawfik, Marwa A. Meheissen   +3 more
doaj   +1 more source