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Experiences with premorbid SUDEP discussion among participants in the North American SUDEP Registry (NASR)

Epilepsy & Behavior, 2017
The North American SUDEP Registry (NASR) is a repository of clinical data and biospecimens in cases of sudden unexpected death in epilepsy (SUDEP), a leading cause of epilepsy-related deaths. We assessed whether bereaved families were aware of SUDEP before their family member's death and their preferences for SUDEP disclosure.
Kyra Doumlele   +8 more
openaire   +3 more sources

SUDEP

Neurology, 2019
Sudden unexpected death in epilepsy (SUDEP) has an incidence of 1–2 cases per 1,000 patients with epilepsy per year,1 and all of those caring for patients with epilepsy will encounter it at some point. There are many unknowns about SUDEP, and we do not talk about it with our patients, likely because of the lack of knowledge about the mechanism causing ...
openaire   +3 more sources

Influence of Risk Factor Combinations on Incidence Rates of SUDEP

Neurology
Background and Objective Information on absolute risks of sudden unexpected death in epilepsy (SUDEP) in individual patients with epilepsy is scarce.
Torbjörn Tomson   +3 more
semanticscholar   +1 more source

SUDEP and Cardiac Arrhythmia

2013
A 19-year-old male had drug-resistant epilepsy and recurrent focal and generalized seizures. Trauma was reported in early childhood after he was struck by an automobile at the age of 5. This resulted in significant traumatic brain injury and cognitive impairment.
openaire   +2 more sources

Ictal asystole and SUDEP

Neurology, 2007
The most frightening consequence of uncontrolled epilepsy is sudden unexplained death (SUDEP). Population studies suggest a risk in the range of 1 to 5 per 1,000 patient-years,1,2 and in high risk populations with neurologic impairments this rate is even higher. How seizures cause sudden death is still debated.
Michael R. Sperling, Norman K. So
openaire   +2 more sources

SUDEP and Grief: Overview and Current Issues

Psychiatric Quarterly, 2018
The medical community and the general public are aware of sudden deaths in apparently healthy infants (SIDS) and in cases of cardiac arrest (SCD). However, there is a third, less-well known, form of sudden death that occurs in persons with epilepsy (SUDEP).
Evander Lomke, Raymond B. Flannery
openaire   +3 more sources

Postictal apnea as an important mechanism for SUDEP: A near-SUDEP with continuous EEG-ECG-EMG recording

Journal of Clinical Neuroscience, 2017
Sudden unexpected death in epilepsy (SUDEP) is one of the most frequent causes of death among patients with epilepsy. Most SUDEP or near-SUDEP are unwitnessed and not observed or recorded during video-EEG recording in epilepsy monitoring units. This report describes a young woman with post ictal apnea and generalized EEG suppression (PGES) after a ...
Zhao Jiang   +5 more
openaire   +3 more sources

Genetics and SUDEP: Challenges and Future Directions

Seizure, 2023
R. Whitney   +3 more
semanticscholar   +1 more source

Seizures and Sudden Death Beyond SUDEP

Neurology
Many physicians and researchers are familiar with the tragic phenomenon known as sudden infant death syndrome (SIDS), the leading cause of postneonatal mortality in high-resource countries. A less familiar category of unexplained deaths is the problem of sudden unexplained death in childhood (SUDC), a more rare and unusual presentation of sudden death ...
Richard D. Goldstein, Annapurna Poduri
openaire   +2 more sources

Counseling about sudden unexpected death in epilepsy (SUDEP): A global survey of neurologists’ opinions

Epilepsy & Behavior, 2022
A. A. Asadi-Pooya   +29 more
semanticscholar   +1 more source

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