Results 41 to 50 of about 3,435,089 (305)

Organic data network: Harmonising organic market data collection in Europe [PDF]

open access: yes, 2013
This contribution emerged as part of the collaborative project “Data network for better European organic market information” carried out in the 7th Framework Programme of the EU.
Feldmann, Corinna, Hamm, Ulrich
core  

Understanding Society: design overview [PDF]

open access: yes, 2011
Understanding Society, the UK Household Longitudinal Study, builds on the success of the British Household Panel Survey (BHPS). This paper describes some of the key elements of the design and conduct of the study and suggests how Understanding Society is
Buck, N, McFall, SL
core   +2 more sources

The HIT Network for Children and Adolescents With CNS Tumors Facilitates Improvements of Diagnostic Assessments, Multimodal Treatments, Individual Counseling, and Research in Germany, Austria, and Switzerland

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background The HIT network was established in 2000 to create a population‐based structure aiming to improve survival rates and reduce late effects for children with central nervous system (CNS) tumors by conducting comprehensive clinical trials.
Stefan Rutkowski   +59 more
wiley   +1 more source

A Practical Guide to Pilot Testing Community-Based Vaccination Coverage Surveys

open access: yesVaccines, 2023
Pilot testing is crucial when preparing any community-based vaccination coverage survey. In this paper, we use the term pilot test to mean informative work conducted before a survey protocol has been finalized for the purpose of guiding decisions about ...
Dale A. Rhoda   +13 more
doaj   +1 more source

inSCALE Baseline Cross-Sectional Survey Uganda [PDF]

open access: yes, 2018
A data collection containing information on 6,501 children under 5 years of age in West Uganda. Data was collected during May - August 2011 as part of a baseline survey prior to implementation of the inSCALE c-RCT in the site.
Soremekun, Seyi
core   +1 more source

Stressful Events Reported by Childhood Cancer Survivors and Community Controls From the St. Jude Lifetime (SJLIFE) Cohort: A Mixed Method Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Characterizing stressful events reported by childhood cancer survivors experienced throughout the lifespan may help improve trauma‐informed care relevant to the survivor experience. Methods Participants included 2552 survivors (54% female; 34 years of age) and 469 community controls (62% female; 33 years of age) from the St.
Megan E. Ware   +13 more
wiley   +1 more source

Classification of data collection methods (= Deliverable 3.1 of the OrganicDataNetwork project - Report on collection methods) [PDF]

open access: yes, 2013
In this report, a number of evaluation and quality criteria for data collection and compilation methods were defined. The results of an online survey on all existing organic market data collection methods in Europe were compiled and assessed ...
Feldmann , Corinna, Hamm, Ulrich
core  

Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Patient activation—encompassing knowledge, confidence, and skills in managing individual's health—is a cornerstone of person‐centered care. However, its significance among childhood, adolescent, and young adult cancer survivors (CAYACS) remains unexplored. This article examines the application of the 13‐item Patient Activation Measure (
Charlotte Demoor‐Goldschmidt   +12 more
wiley   +1 more source

Wiki Surveys: Open and Quantifiable Social Data Collection

open access: yesPLOS ONE, 2015
In the social sciences, there is a longstanding tension between data collection methods that facilitate quantification and those that are open to unanticipated information. Advances in technology now enable new, hybrid methods that combine some of the benefits of both approaches.
Matthew J Salganik, Karen E C Levy
openaire   +5 more sources

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

open access: yesPediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia   +7 more
wiley   +1 more source

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