Results 51 to 60 of about 141,071,311 (288)
FEBS Open Bio, EarlyView.Research is strongest when conducted alongside patients, not just about them. Patient research organizations help integrate patient perspectives into research priorities, study design, and scientific meetings, leading to meaningful patient outcomes and development of relevant therapies.
Jenica H. Kakadia +9 more
wiley +1 more source
Refuge, 2016 Societal attitudes towards children significantly limit the extent to which they are able to realize their rights and can contribute to discrimination against children.
Jyothi Kanics
doaj +1 more source
Guaranteeing children with disabilities the right to be heard
, 2016 Following their analysis of the 2012 Protection of Children from Sexual Offences Act Srishti Agnihotri and Minakshi Das consider the specific challenges associated with ending the sexual abuse of children with disabilities.
Das, Minakshi, Agnihotri, Srishti
core +3 more sources
Elevated Connectivity During Language Processing Is Associated With Cognitive Performance in SeLECTS
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Self‐Limited Epilepsy with Centrotemporal Spikes (SeLECTS) is associated with language impairments despite seizures originating in the motor cortex, suggesting aberrant cross‐network interactions. Here we tested whether functional connectivity in SeLECTS during language tasks predicts language performance.
Wendy Qi +8 more
wiley +1 more source
Public and Private International Law Bulletin, 2020 UNCITRAL Model Law does not stipulate detailed rules of evidence but grants the parties and the arbitral tribunal the power to agree or determine the rules of evidence subject to the mandatory provisions of lex arbitri. The Model Law also states that the
Cemile Demir Gökyayla
doaj +1 more source
RNA Sequencing Resolves Cryptic Pathogenic Variants in Mitochondrial Disease
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Mitochondrial diseases are the most common inherited metabolic disorders, characterized by pronounced clinical and genetic heterogeneity that complicates molecular diagnosis. Although DNA‐based sequencing approaches have become standard in genetic testing, up to half of patients remain without a definitive diagnosis.
Zhimei Liu +21 more
wiley +1 more source
Digital Cognitive Testing in Mitochondrial Disease: Validity and Challenges for Clinical Trial Use
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Background Primary mitochondrial disease is a group of genetic disorders caused by pathogenic variants in nuclear or mitochondrial DNA, often resulting in progressive neurodegeneration and cognitive decline. Current management is primarily supportive, though recent research offers hope for disease‐modifying treatments in the future.
Oksana Pogoryelova +9 more
wiley +1 more source
Right to be Heard in Administrative Procedure
Brown bag presentation on a forthcoming work titled, Right to be Heard in Administrative Procedure by Mine Turhan, Visiting Scholar at UGA Law’s Dean Rusk International Law Center and Assistant Professor of Administrative Law in the Faculty of Law at ...
Turhan, Mine
core +3 more sources
The right to a voice and the fight to be heard: The experience of being an ESL user in Australia [PDF]
, 2013 This paper focuses on the fundamental right to be heard, that is, the right to have one’s voice heard and listened to – to impose reception (Bourdieu, 1977).
Kettle, Margaret A.
core
Endothelial Cell Proteins as Biomarkers in Susac Syndrome
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Susac syndrome (SS) is a rare CD8+ T cell–mediated microangiopathy affecting the brain, retina, and auditory labyrinth. Endothelial injury is thought to be a central mechanism; however, no circulating disease biomarkers are known. We performed targeted proteomic profiling to identify circulating endothelial‐associated proteins as ...
Rohit Benjamin +11 more
wiley +1 more source