Results 11 to 20 of about 51,124,910 (229)

Semi-automated data provenance tracking for transparent data production and linkage to enhance auditing and quality assurance in Trusted Research Environments [PDF]

International Journal of Population Data Science
Introduction We present a prototype solution for improving transparency and quality assurance of the data linkage process through data provenance tracking designed to assist Data Analysts, researchers and information governance teams in authenticating ...
Katherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Bernhard Scheliga, Chinasa Odo, Katie Wilde   +5 more
doaj   +2 more sources

K8TRE and FRIDGE: Bridging Kubernetes-native Trusted Research Environments with High-Performance Computing for Sensitive Data [PDF]

International Journal of Population Data Science
Trusted Research Environments (TREs) have become the established way of making sensitive data available to researchers while maintaining public trust.
Mike Harding, Simon Li, Matthew Craddock, Finley Bacon, Lakshitha de Silva, Jim Madge, Gordon Milligan, Saurav Nair Sudhar, George Svarovsky, Alwin Thomas   +9 more
doaj   +2 more sources

From Collaboration to Impact: Insights from the DARE UK Community Building programme [PDF]

International Journal of Population Data Science
How can effective community building transform a fragmented Trusted Research Environment (TRE) ecosystem into a connected, standardised one? And how can it elevate the work of data custodians, data scientists and others across the sector, while ...
Najmeh Modarres, Elizabeth Waind, Katie Porter, Cassandra Gould Van Praag   +3 more
doaj   +2 more sources

E-Research Institutional Cloud Architecture (ERICA): An Orchestration Meta-Framework for Establishing Trusted Research Environments Using Public Cloud Computing [PDF]

International Journal of Population Data Science
Introduction The E-Research Institutional Cloud Architecture (ERICA) is a code-driven orchestration framework that automates the configuration and management of Amazon Web Services (AWS) resources to provide trusted research environments (TREs) for ...
Timothy Churches, Richard Green, Phi Bang Nguyen, Md Shajedur Rahman Shawon, Louisa Jorm   +4 more
doaj   +2 more sources

The automated generation of data linkage Information: A reusable, scalable metadata framework for Trusted Research Environments [PDF]

International Journal of Population Data Science
Using the correct linkage keys to join tables is essential when combining data from multiple sources. Although Trusted Research Environments (TREs) provide metadata to support data linkage, to the best of our knowledge, none currently automate the ...
Mohamed Mhereeg, Anna Rawlings, Gareth Davies, Owen Howell-Wright, Lee Hughes, Ashley Akbari, Hywel Evans   +6 more
doaj   +2 more sources

Towards standardised cross-sectoral agreements for data depositing and data access in Trusted Research Environments: streamlined contracting to advance public benefit research.  [PDF]

International Journal of Population Data Science
Objective  Trusted Research Environments (TREs) rely on Data Contributor Agreements (DCAs) and Data Access Agreements (DAAs) to bind organisations to terms and conditions in place to protect data.
Rachel Brophy, Cassie Smith, Andy Boyd, Pan UK Data Governance Steering Group   +3 more
doaj   +3 more sources

Understanding the challenges researchers face in accessing sensitive data across multiple trusted research environments in one federated study [PDF]

International Journal of Population Data Science
Accredited UK researchers can access anonymised data about UK citizens through dozens of Trusted Research Environments (TRE). Each TRE specialises on national or regional data and specific disciplines such as social, health and administrative services ...
Jano van Hemert, Kostas Kavoussanakis, Kara Moraw, Chris Wood, Ioanna Lampaki, Roger Halliday, Ryan Bremner, Jennifer Muir, Emily Symmons, Sophie Elfar   +9 more
doaj   +2 more sources

Standardizing Access to Sensitive Data with Machine-Actionable Access Conditions [PDF]

International Journal of Population Data Science
This paper examines the challenge of governing access to sensitive research data in a scalable and interoperable way. While Trusted Research Environments (TREs) have improved technical protection of sensitive data, access procedures remain fragmented ...
Ahmad Hesam
doaj   +2 more sources

Professionals’ perspectives on trusted persons in French nursing homes [PDF]

BMC Health Services Research
Background France faces growing challenges with an aging population and neurodegenerative disorders. French health law allows patients to appoint a trusted person (“personne de confiance”) to communicate their medical preferences if incapacitated ...
Maïva Faye-Ropaul, Carine Khalil
doaj   +2 more sources

Federating governance, access and infrastructure to support researcher use of synthetic data [PDF]

International Journal of Population Data Science
Synthetic Data has the potential to improve efficiency of data analysis for researchers. However, there is no standard approach to synthetic data governance, access controls or infrastructure requirements, and researchers may face inconsistencies in how
Katherine O'Sullivan, Jackie Caldwell, Christian Cole, Kathy Harrison, Charlie Mayor, Antonietta Chaliou, Jaroslaw Dymiter, Stacey Dawson, Diane Brown, Katie Wilde   +9 more
doaj   +2 more sources