Results 71 to 80 of about 5,175,775 (316)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

Perceived impacts of North Americas first de-medicalized safer supply program

open access: yesSubstance Abuse Treatment, Prevention, and Policy
Background The Drug User Liberation Front led an evaluation of a non-medicalized model of safer supply known as a “Compassion Club.” This club sourced, rigorously tested, packaged, and accurately labeled certain illicit substances and then provided them ...
Jeremy Kalicum   +3 more
doaj   +1 more source

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee   +9 more
wiley   +1 more source

Introducing patient stories in health sciences education: the learning experiences of students

open access: yesBMC Medical Education
Background It has been advocated that the development of medical school curricula must be informed by students, doctors in training, educators, employers, other health and social care professionals and patients, families and carers.
Astrid Janssens   +5 more
doaj   +1 more source

THE ROLE OF USER GENERATED CONTENT IN «NEW» MEDIA RESEARCH

open access: yesSovremennye Issledovaniâ Socialʹnyh Problem, 2014
Purpose/subjectInvestigation of the role of user generated content in understanding of «new» media.Method/methodologyStructural and functional method is in the base.Results of workThe «new» media technologies meaning is considerated from the position of ...
Dmitry Igorevich Kaminchenko
doaj   +1 more source

Feasibility and Safety of High‐Dose Proton Re‐Irradiation in Recurrent Pediatric Central Nervous System Tumors: A Single‐Institution Retrospective Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Pediatric central nervous system (CNS) tumors often recur despite multimodality therapy. Although re‐irradiation (re‐RT) has historically been limited by concerns for severe late toxicities, modern techniques have renewed interest in this approach. Proton therapy provides dosimetric advantages that may enable curative re‐treatment with
Jin‐Ho Song   +15 more
wiley   +1 more source

NeuroGaze: a hybrid EEG and eye-tracking brain-computer interface for hands-free interaction in virtual reality

open access: yesFrontiers in Human Neuroscience
Brain-Computer Interfaces (BCIs) have traditionally been studied in clinical and laboratory contexts, but the rise of consumer-grade devices now allows exploration of their use in daily activities.
Kyle Coutray   +3 more
doaj   +1 more source

Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care Teams

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Early integration of pediatric palliative care (PPC) is associated with improved symptom management, quality of life, and healthcare utilization for children with cancer. Despite this, variation persists in how PPC is understood, operationalized, and integrated within pediatric oncology programs. In particular, ambiguity surrounding
Leeat Granek   +13 more
wiley   +1 more source

Feasibility and Preliminary Efficacy of Integrative Neuromuscular Training for Childhood Cancer Survivors: A Pilot Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Survivors of childhood acute lymphoblastic leukemia (ALL) often exhibit early deficits in muscle and movement competence, which can compromise long‐term health. Integrative neuromuscular training (INT), a multifaceted approach combining fundamental movement activities with strength exercises, may help address these deficits during ...
Anna Maria Markarian   +7 more
wiley   +1 more source

An Overview of Participatory Design Applied to Physical and Digital Product Interaction for Older People

open access: yesMultimodal Technologies and Interaction, 2018
An understanding of the need for user-centred and participatory design continues to gain universal momentum both in academia and industry. It is essential this momentum is maintained as the population changes and technology develops.
Christopher Wilkinson, Katie Cornish
doaj   +1 more source

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