Results 121 to 130 of about 6,250,860 (324)

Prediction of Myasthenia Gravis Worsening: A Machine Learning Algorithm Using Wearables and Patient‐Reported Measures

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Myasthenia gravis (MG) is a rare disorder characterized by fluctuating muscle weakness with potential life‐threatening crises. Timely interventions may be delayed by limited access to care and fragmented documentation. Our objective was to develop predictive algorithms for MG deterioration using multimodal telemedicine data ...
Maike Stein, Haoqi Sun, Sophie Lehnerer, Lea Gerischer, Maximilian Mönch, Christian Meisel, Andreas Meisel, Pushpa Narayanaswami   +7 more
wiley   +1 more source

Monitoring health service use at the end of life in the Calgary Zone of Alberta: a Population-level analysis linking multiple administrative datasets

International Journal of Population Data Science, 2018
Introduction As part of the Alberta Health Services (AHS) Calgary Zone Healthcare planning, a Palliative and End of Life Care Program (PEOLC) dashboard was developed and face validity of the indicators was examined by key stakeholders such as clinicians ...
Pin Cai, Andrew Fong, Aynharan Sinnarajah   +2 more
doaj   +1 more source

Effectiveness and Safety of Nusinersen and Risdiplam in Spinal Muscular Atrophy: A Systematic Review

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinal Muscular Atrophy (SMA) is a rare genetic disorder marked by progressive muscle weakness and mobility loss. It has a profound physical, emotional and social impact on patients and caregivers, requiring comprehensive medical and supportive care.
Amin Mehrabian, Peter Auguste, Amy Grove, Anna Brown, Janette Parr, Mubarak Patel, Furqan Butt, Jeremiah Donoghue, Mehdi Yousefi, Jo Parsons   +9 more
wiley   +1 more source

Gender differences in survival across the ages of life: an introduction

Genus
This thematic series explores the complex nature of the survival gap between genders across the lifespan. It highlights how, although women generally have a longer life expectancy than men globally, the complexity of this advantage challenges simplistic ...
Virginia Zarulli, Giambattista Salinari
doaj   +1 more source

Which best predicts suicides in Northern Ireland - self-rated mental health or medication record?

International Journal of Population Data Science, 2018
Background Over 800,000 suicides occur annually worldwide, and approximately 300 suicides in Northern Ireland (NI) each year. Studies from elsewhere have highlighted the role of mental health in the risk of death by suicide, but such studies are scarce ...
Ifeoma Onyeka, Aideen Maguire, Dermot O’Reilly   +2 more
doaj   +1 more source

Where, How, and How Much? A Multicenter Cohort Study of the Relationship Across Lupus Decision‐Aid Modality, Place of Administration, Interruption and Viewing Completeness, and Patient‐Reported Outcomes

Arthritis Care &Research, EarlyView.
Objective We assessed whether shared decision‐making (SDM) and patient acceptability, feasibility, and overall satisfaction with a computerized patient decision aid (PtDA) for patients with systemic lupus erythematosus (SLE) differs by PtDA setting, modality, and the viewing experience. Methods Patients with SLE were invited to view a self‐administered
Jasvinder A. Singh, Mark Beasley, Larry R. Hearld, for the Implementing Decision‐Aid for Lupus in Clinics (IDEAL) Consortium, Winn Chatham, Jasvinder Singh, Sonali Narain, Narender Annapureddy, Diane Kamen, Kimberly Trotter, Vikas Majithia, Cathy Ching, Zineb Aouhab, Swamy Venturupalli, Rosalind Ramsey‐Goldman, Alfred Kim, Maureen McMahon, Sam Lim, Kalpana Bhairavarasu, Alexa Meara, Kenneth Kalunian   +20 more
wiley   +1 more source

The politics of administrative data: A case study of school census data for children with SEND

International Journal of Population Data Science, 2018
Background From 2016 to 2018 we collaborated on a programme of work with a local authority in the South West of England around understanding diagnosis trends for children with special educational needs and disabilities (SEND).
Emily Rempel, Hannah Durrant, Julie Barnett   +2 more
doaj   +1 more source

Development of a Personalized Visualization and Analysis Tool to Improve Clinical Care in Complex Multisystem Diseases With Application to Scleroderma

Arthritis Care &Research, EarlyView.
Objective In complex diseases, it is challenging to assess a patient's disease state, trajectory, treatment exposures, and risk of multiple outcomes simultaneously, efficiently, and at the point of care. Methods We developed an interactive patient‐level data visualization and analysis tool (VAT) that automates illustration of the trajectory of a ...
Ji Soo Kim, John Scott, Lauren Fisher, Lauren N. Smith, Willie Stewart, Adrianne Woods, Rob Smithwright, Diane Koher, Parastoo Aslanbeik, Aalok B. Shah, Brad Tibbils, Samantha I. Pitts, Ayse P. Gurses, Yushi Yang, Ana‐Maria Orbai, Antony Rosen, Laura K. Hummers, Scott L. Zeger, Ami A. Shah   +18 more
wiley   +1 more source

ADRF Network Hosts Research Conference to Advance Uses of Administrative Data in the United States

International Journal of Population Data Science, 2018
The Administrative Data Research Facilities (ADRF) Network is a new U.S.-based effort aimed at advancing the uses of administrative data in social science research. Together with Georgetown University’s Massive Data Institute, the ADRF Network hosted its
Monica M King
doaj   +1 more source

Lived and Care Experiences of Chronic Musculoskeletal Shoulder Pain in Australian Adults: A Qualitative Study

Arthritis Care &Research, EarlyView.
Objective Australian evidence on lived and care experiences of chronic musculoskeletal shoulder pain (CMSP), irrespective of disorder classification or disease, is limited. However, such evidence is important for person‐centered care and informing local service pathways and care guidelines or standards.
Sonia Ranelli, Joanne E. Jordan, Ilana N. Ackerman, Alison Thorpe, Jennifer G. Persaud, Linda J. Woodhouse, Jason Chua, Ben Horgan, Andrew M. Briggs   +8 more
wiley   +1 more source