Results 121 to 130 of about 151,232 (337)
Update on the pathophysiology and classification of von Willebrand disease: a report of the Subcommittee on von Willebrand Factor
Journal of Thrombosis and Haemostasis, 2006 J. Sadler, U. Budde, J. Eikenboom, E. Favaloro, F. Hill, L. Holmberg, J. Ingerslev, Christine A. Lee, D. Lillicrap, P. Mannucci, C. Mazurier, D. Meyer, W. Nichols, M. Nishino, I. Peake, F. Rodeghiero, R. Schneppenheim, Z. Ruggeri, A. Srivastava, R. Montgomery, A. Federici +20 moresemanticscholar +1 more sourceContrasting Approaches in the Implementation of GRADE Methodology in Guidelines for Haemophilia and Von Willebrand Disease
Haemophilia, EarlyView.ABSTRACT Introduction
The 2024 ISTH clinical practice guideline (CPG) for treatment of congenital haemophilia, the NBDF‐McMaster Guideline on Care Models for Haemophilia Management, and ASH ISTH NBDF WFH guidelines on the diagnosis and management of VWD all utilised GRADE methodology.Mark W. Skinner, Manuela Albisetti, Jesús Ardila, Jan Astermark, Jan Blatny, Manuel Carcao, Pratima Chowdary, Nathan T. Connell, Miguel Crato, Yesim Dargaud, Roseline d'Oiron, Amy L. Dunn, Miguel A. Escobar, Carmen Escuriola‐Ettingshausen, Emna Gouider, Annie Harroche, Cedric Hermans, Victor Jimenez‐Yuste, Radoslaw Kaczmarek, Gili Kenet, Liane Khoo, Robert Klamroth, Florian Langer, David Lillicrap, Johnny Mahlangu, Christoph Male, Tadashi Matsushita, Sandrine Meunier, Wolfgang Miesbach, Beatrice Nolan, Johannes Oldenburg, Brian O'Mahony, Margareth Ozelo, Glenn F. Pierce, Gloria Ramos, Michael Recht, Olivia Romero‐Lux, Dawn Rotellini, Rita C. Santoro, Tammuella C. Singleton, Alok Srivastava, Sophie Susen, Kate Talks, Huyen Tran, Leonard A. Valentino, Jerzy Windyga, Renchi Yang, Maria Elisa Mancuso, also on behalf of AICE, AHAD‐AP, AHCDC, ATHN, CLAHT, EHC, French CRH & MHEMO, HTCCNC, NBDF, PEDNET, UKHCDO, WFH +59 morewiley +1 more sourceHealth‐Related Quality of Life in Adult Patients With von Willebrand Disease From Germany: Results of the WIL‐QoL Study
Haemophilia, EarlyView.ABSTRACT Introduction
Assessment of health‐related quality of life (HRQoL) is relatively new in von Willebrand disease (VWD). So far, generic questionnaires have mainly been used for HRQoL assessment in VWD. Aims
To assess generic and disease‐specific HRQoL in adult VWD patients and compare HRQoL with the general German population.Sylvia von Mackensen, Carolin Moorthi, Ronald Fischer, Susan Halimeh, Christine Heller, Wolfgang Miesbach, Freimut H. Schilling, Cornelia Wermes, Guenter Auerswald, the WIL‐QoL study group, Karin Beutel, Georg Goldmann, Bettina‐Kemkes Matthes, Robert Klamroth, Ralf Knöfler, Christoph Male, Johannes Oldenburg, Ute Scholz +17 morewiley +1 more sourceProphylaxis in severe forms of von Willebrand's disease: results from the von Willebrand Disease Prophylaxis Network (VWD PN) [PDF]
, 2012 Thomas C. Abshire, Augusto B. Federici, M. T. Alvárez, Joel Bowen, Manuel Carção, Joan Cox Gill, Nigel S. Key, Peter A. Kouides, Karin Kurnik, Alice Lail, Frank W.G. Leebeek, Michael Makris, P.M. Mannucci, Rochelle Winikoff, E. Berntorp, VWD PN +15 moreopenalex +1 more sourceNoncanonical type 2B von Willebrand disease associated with mutations in the VWF D′D3 and D4 domains [PDF]
, 2020 Monica Sacco, Stefano Lancellotti, Mattia Ferrarese, Francesco Bernardi, Mirko Pinotti, Maira Tardugno, Erica De Candia, Leonardo Di Gennaro, Maria Sole Basso, Betti Giusti, Massimiliano Papi, Giordano Perini, Giancarlo Castaman, Raimondo De Cristofaro +13 moreopenalex +1 more sourceOutcomes of long‐term von Willebrand factor prophylaxis use in von Willebrand disease: A systematic literature review [PDF]
, 2022 Abdallah El Alayli, Romina Brignardello Petersen, Nedaa Husainat, Mohamad A. Kalot, Yazan Aljabiri, Hani Turkmani, Alec Britt, Hussein El‐Khechen, Shaneela Shahid, John Roller, Shahrzad Motaghi, Razan Mansour, Alberto Tosetto, Rezan A. Kadir, Michael Laffan, Angela C. Weyand, Frank W.G. Leebeek, Alice Arapshian, Peter A. Kouides, Paula James, Nathan T. Connell, Veronica H. Flood, Reem A. Mustafa +22 moreopenalex +1 more sourceVon Willebrand Disease in the elderly: clinical perspectives
Clinical Interventions in Aging, 2018 John Chapin Department of Hematology, Shire, Lexington, MA, USA Abstract: Von Willebrand disease (VWD) is an inherited bleeding disorder that affects up to 1% of the population. In most cases, VWD results from a mutation in the von Willebrand Factor (VWF)Chapin Jdoaj