Results 221 to 230 of about 55,057 (273)

Clinical Characteristics of Arginase 1 Deficiency: Natural History Insights From International Clinical Trials

open access: yesJournal of Inherited Metabolic Disease, Volume 49, Issue 2, March 2026.
ABSTRACT Arginase 1 deficiency (ARG1‐D) is an ultra‐rare inherited metabolic disorder of the urea cycle, caused by partial or complete loss of arginase 1 function, characterised by hyperargininaemia and a distinct, progressive neurological phenotype. The clinical development programme of pegzilarginase, a recombinant human ARG1 enzyme therapy, provides
Mattias Rudebeck   +10 more
wiley   +1 more source

Pacific People's Palliative and End‐of‐Life Care Experiences in Aotearoa New Zealand

open access: yesKōtuitui: New Zealand Journal of Social Sciences Online, Volume 21, Issue 1, March 2026.
Background: Pacific patients and families in New Zealand have limited access to palliative care services in comparison with non‐Pacific families. Culturally, Pacific families prefer to take care of their family members in the home. Yet, Pacific families tend to experience challenges in accessing services and support from such services typically because
Elizabeth Fanueli   +4 more
wiley   +1 more source

The Experiences of Older Unpaid Carers in New Zealand: Navigating Access to Care and Negotiating Transitions Under a ‘Cloak of Invisibility’

open access: yesKōtuitui: New Zealand Journal of Social Sciences Online, Volume 21, Issue 1, March 2026.
In an aging society, the substantial and enduring contribution to caring for an older person at home is often unpaid and largely invisible to policymakers and health professionals. Current research on caring roles has paid minimal attention to the views of older, unpaid carers looking after older adults.
Philippa Miskelly   +5 more
wiley   +1 more source

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