Results 171 to 180 of about 291,913 (255)

Exploring patient motivations and preferences for medical data sharing with researchers: a simulation study using the iAgree platform. [PDF]

J Am Med Inform Assoc
Keller MS, Nguyen AT, Leder C, Chen Y, Morse B, Schilling LM, Hu D, SooHoo S, Ohno-Machado L.   +8 more
europepmc   +1 more source

The Gut–Heart Axis in Systemic Sclerosis: Evidence From a Large Prospective Early Disease Cohort

Arthritis Care &Research, EarlyView.
Objective Cardiac involvement significantly impacts prognosis in systemic sclerosis (SSc), highlighting the need for early risk stratification. Gastrointestinal (GI) symptoms are common and often manifest early. Emerging data suggest a link between GI and cardiac manifestations, possibly through shared mechanisms like dysautonomia.
Francesca R. Di Ciommo, Ashish P. Balar, Aidan K. Strother, Subhash Kulkarni, Michael Hughes, Brian Skaug, Maureen D. Mayes, Shervin Assassi, Ali Y. Ayla, Zsuzsanna H. McMahan   +9 more
wiley   +1 more source

From Isolation to Collaboration: Data Trading Mechanism in the Era of Large Language Model Democratization. [PDF]

Research (Wash D C)
Wang K, Hui H.
europepmc   +1 more source

Access and Benefit Sharing tools and guidelines

D5.1: Linked to the activities of D7.5-7.6, report on consortium partners' response to the Access and Benefit Sharing (ABS) tool and associated guidelines on conformance to ABS standards. To aid this, provide access to an ABS tool and prototype the linking of this tool to the MGnify resource [T5.1].
openaire   +1 more source

Distinct Systemic Sclerosis Phenotypes Related to Ethnicity: An Opportunity to Personalize Care?

Arthritis Care &Research, EarlyView.
Objective The objective is to describe and compare demographic, clinical, and serological characteristics of patients with systemic sclerosis (SSc) according to ethnic background. Methods Participants enrolled in the Canadian Scleroderma Research Group cohort who self‐identified to a single ethnicity group were included.
Danick Goulet, Camille Guertin, Maggie Larché, Isabelle Ferdinand, Marie Hudson, May Y. Choi, Mohammed Osman, Janet Pope, Carter Thorne, Murray Baron, Sasha Bernatsky, Sabrina Hoa   +11 more
wiley   +1 more source

Trust and trade: patient perspectives on the ethics of real-world data monetisation. [PDF]

Front Health Serv
Sagkriotis A.
europepmc   +1 more source

Engagement Patterns With an Artificial Intelligence Health Coach for Systemic Sclerosis Self‐Management: A Mixed Methods Study

Arthritis Care &Research, EarlyView.
Objective To evaluate utility of an artificial intelligence (AI) health coach for systemic sclerosis (SSc) self‐management and identify patterns associated with participant engagement. Methods We conducted a mixed methods study in which an AI health coach, powered by a large language model (LLM), was used to support self‐management for SSc.
Nirali Shah, Melanie Morris, Cristina Daraban, Sophia Johnson, Susan L. Murphy   +4 more
wiley   +1 more source

Building a single market for data: Data spaces as pro-competitive infrastructure. [PDF]

Data Brief
Konstantopoulou ES.
europepmc   +1 more source

From Adult to Adolescent: Alignment in Clinical Trials and Outcomes in Axial Spondyloarthritis

Arthritis Care &Research, EarlyView.
Spondyloarthritis (SpA) is a group of chronic inflammatory diseases encompassing axial and peripheral forms, with up to 20% of patients developing symptoms before age 16. Despite this substantial pediatric burden, treatment options for juvenile‐onset SpA (JSpA), particularly those with axial disease (axJSpA), remain limited.
Pamela F. Weiss, Judith A. Smith, Robert A. Colbert, Erin Treemarcki, Michael H. Weisman, Walter P. Maksymowych, Hermine I. Brunner, for the Childhood Arthritis and Rheumatology Research Alliance, Spondyloarthritis Research and Treatment Network, and Pediatric Rheumatology Collaborative Study Group Advisory Council   +9 more
wiley   +1 more source

Centralized equipment allocation in a large tertiary hospital: Operational and economic outcomes of a hub-based coordination model. [PDF]

Medicine (Baltimore)
Zhou X, Wan J, Pan Z.
europepmc   +1 more source