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Choosing Life, Not Suffering

Voices in Bioethics, 2014
In his 2010 New Yorker piece titled “Letting Go,” Dr. Atul Gawande discusses the case of Sara Thomas Monopoli, a 34-year-old woman with inoperable and metastatic lung cancer.
Mytra Haerizadeh, Dylan Marshall
doaj   +1 more source

Positive attitudes to advance care planning – a Norwegian general population survey

BMC Health Services Research, 2021
Background Authorities recommend advance care planning and public acceptance of it is a prerequisite for widespread implementation. Therefore, we did the first study of the Norwegian public with an aim of getting knowledge on their attitudes to issues ...
Trygve Johannes L. Sævareid, Reidar Pedersen, Morten Magelssen   +2 more
doaj   +1 more source

Prevalence, content and significance of advance care planning in nursing home patients

Scandinavian Journal of Primary Health Care, 2022
Objective Studies on advance care planning in nursing homes are rare, and despite their demonstrated favourable effects on end-of-life care, advance care plans are often lacking.
L. Kastbom, M. Falk, Marit Karlsson, A. Tengblad, A. Milberg   +4 more
semanticscholar   +1 more source

"Hope for the best, prepare for the worst": A qualitative interview study on parents' needs and fears in pediatric advance care planning. [PDF]

, 2016
Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are respected and thus improve end-of-life care.
Borasio, G.D., Daxer, M., Führer, M., Jox, R.J., Lotz, J.D.   +4 more
core   +2 more sources

A website supporting sensitive religious and cultural advance care planning (ACPTalk): Formative and summative evaluation [PDF]

, 2018
Background: Advance care planning (ACP) promotes conversations about future health care needs, enacted if a person is incapable of making decisions at end-of-life that may be communicated through written documentation such as advance care directives.
Boyd, leanne.boyd@acu.edu.au, Leanne Boyd, Mader, Patrick, O'Callaghan, Clare, Pereira-Salgado, Amanda   +4 more
core   +2 more sources

Efficacy of Normalisation of Advance Care Planning (NACP) for people with chronic diseases in hospital and community settings: a quasi-experimental study

BMC Health Services Research, 2021
Background Advance Care Planning (ACP) has emerged to improve end-of-life processes and experiences. However, the available evidence presents the gloomy picture of increasing number of older people living with chronic diseases and the mismatch between ...
Sarah Jeong, Peter Cleasby, Se Ok Ohr, Tomiko Barrett, Ryan Davey, Christopher Oldmeadow   +5 more
doaj   +1 more source

Effectiveness of a Nurse-Led Multidisciplinary Intervention vs Usual Care on Advance Care Planning for Vulnerable Older Adults in an Accountable Care Organization: A Randomized Clinical Trial.

JAMA Internal Medicine, 2021
Importance Advance care planning (ACP), especially among vulnerable older adults, remains underused in primary care. Additionally, many ACP initiatives fail to integrate directly into the electronic health record (EHR), resulting in infrequent and ...
J. Gabbard, N. Pajewski, Kathryn E Callahan, Ajay Dharod, K. Foley, Keren G. Ferris, A. Moses, J. Willard, J. Williamson   +8 more
semanticscholar   +1 more source

Barriers and Solutions to Advance Care Planning among Homeless-Experienced Older Adults. [PDF]

, 2020
Background/Objectives: Older homeless-experienced adults have low rates of advance care planning (ACP) engagement despite high rates of morbidity and mortality.
Arellano Cuervo, Isabel, Bainto, Dustin, Kaplan, Lauren M, Kushel, Margot, Olsen, Pamela, Sudore, Rebecca L   +5 more
core   +2 more sources

Junior Medical Officers’ knowledge of advance care directives and substitute decision making for people without decision making capacity: a cross sectional survey

BMC Medical Ethics, 2022
Background For the benefits of advance care planning to be realised during a hospital admission, the treating team must have accurate knowledge of the law pertaining to implementation of advance care directives (ACDs) and substitute decision making. Aims
Jamie Bryant, Amy Waller, Alison Bowman, Robert Pickles, Carolyn Hullick, Emma Price, Ben White, Lindy Willmott, Anne Knight, Mary-Ann Ryall, Rob Sanson-Fisher   +10 more
doaj   +1 more source

Pediatric advance care planning from the perspective of health care professionals: a qualitative interview study. [PDF]

, 2014
BACKGROUND: Pediatric advance care planning differs from the adult setting in several aspects, including patients' diagnoses, minor age, and questionable capacity to consent. So far, research has largely neglected the professionals' perspective.
Borasio, G.D., Führer, M., Jox, R.J., Lotz, J.D.   +3 more
core   +2 more sources