ABSTRACT The scarcity of clinical information surrounding rare chromosome disorders poses challenges for parents and clinicians. To bridge this gap for chromosome 6 disorders, the Chromosome 6 Project collects detailed genotype and phenotype data, aiming to provide aberration‐specific phenotype information to parents via an interactive website.
Eleana Rraku+6 more
wiley +1 more source
How can measurement-based care improve psychotherapy processes and mental health service delivery? A synthesis of expert perspectives. [PDF]
Moltu C+16 more
europepmc +1 more source
Exploring Oral Health Related Quality of Life in Rett Syndrome Using Directed Content Analysis
ABSTRACT No validated oral health‐related quality of life (OHRQOL) instrument currently exists for those with severe intellectual and developmental disabilities and who communicate non‐verbally. This qualitative study aimed to explore the domains that were important to the oral health‐related quality of life in individuals with Rett syndrome (RTT).
Yvonne Yee Lok Lai+4 more
wiley +1 more source
Publisher Correction: Psychometric properties of the Arabic emotional and behavioral reaction to intrusions questionnaire among sample of Arabic speaking adults. [PDF]
Awad E+15 more
europepmc +1 more source
Book Reviews: Applied Psychology: Research, Training and Practice, 2nd ed., Ethical Maturity in the Helping Professions: Making Difficult Life and Work Decisions, Feedback in Higher and Professional Education: Understanding it and Doing it Well, Interpersonal Regulation of Learning and Motivation: Methodological Advances, Psychometric Assessment, Statistics and Report Writing, Qualitative Research: The Essential Guide to Theory and Practice, Understanding Abnormal Psychology: Clinical … [PDF]
Simon Duff+4 more
openalex +1 more source
Clinical psychology is an applied evolutionary science.
S. Hayes, S. Hofmann, D. Wilson
semanticscholar +1 more source
ABSTRACT This exploratory cross‐sectional study aimed to estimate the family quality of life (FQoL) among 70 Brazilian families with children with Cornelia de Lange syndrome (CdLS). Data were collected using sociodemographic and clinical data forms, the Barthel index for activities of daily living, and the Beach Center FQoL Scale, a 5‐point Likert tool
Aline Apis+8 more
wiley +1 more source
Corrigendum: Body image is associated with persistence. A study of the role of weight-related stigma. [PDF]
Styk W+5 more
europepmc +1 more source
ABSTRACT Women with the FMR1 premutation (FXpm) are at heightened genetic vulnerability for depression, with risk compounded by the stressors of parenting a disabled child. Although risk factors persist as FXpm women age, depression in FXpm mothers during midlife and old age is poorly characterized. This study used an accelerated longitudinal design to
Jessica Klusek+8 more
wiley +1 more source