Abstract Discussing sudden unexpected death in epilepsy (SUDEP) is difficult and sensitive for health care providers (HCPs), people with epilepsy (PwE), and caregivers. This scoping review examines the literature on SUDEP communication, focusing on need, timing, content, methods, facilitators, barriers, and outcomes. We performed a thematic analysis to
Amir Aschner +5 more
wiley +1 more source
Tracking under-five mortality from 1990 to 2023: Global, regional, and national trends, inequities, and projections toward achieving SDG Target 3.2 by 2030. [PDF]
Cao G, Liu J, Liu M.
europepmc +1 more source
Graphical abstract for the systematic literature review. Abstract Objective Dravet syndrome (DS) places tremendous burden on caregivers owing to the extent of required assistance and impact on daily living, as well as the risk to the individual with DS of premature mortality from sudden unexpected death in epilepsy and morbidity associated with ...
Adam Strzelczyk +8 more
wiley +1 more source
Analysis of the Genome Aggregation Database (gnomAD) reveals a global burden of cystic fibrosis and the need for improved diagnosis and care. [PDF]
Bar L, Darrah RJ, Vaidyanathan S.
europepmc +1 more source
Mortality in functional seizures: Evidence from a large electronic health records dataset
Abstract Objective Several studies have found that people with functional seizures (FS) have increased mortality, approaching that of epilepsy (epileptic seizures [ES]). The small numbers of deaths in these studies make it unclear whether they can be attributed to comorbidities. We used a very large electronic health database to compare mortality in FS
Richard A. Kanaan +4 more
wiley +1 more source
Abstract Objective Despite advancements in “autoimmune epilepsy,” more accurately referred to herein as seizures or epilepsy of autoimmune etiology, significant variability exists in its recognition, diagnosis, and management internationally. This study assessed clinicians' understanding, access to diagnostic tools, and treatment practices across ...
Emily Guarasci +3 more
wiley +1 more source
Global, regional, and national burden of soft tissue and other extraosseous sarcomas, 1990-2021: A Systematic analysis for the global burden of disease study 2021. [PDF]
Yuan X, He J, Li R.
europepmc +1 more source
Widening participation in the International League Against Epilepsy: Looking to the future
Abstract The International League Against Epilepsy (ILAE) is a global organization dedicated to improving the lives of people with epilepsy through education, research, and advocacy. Recognizing the need for broader engagement and multidisciplinary collaboration, the ILAE has established five sections: Young Epilepsy Section (YES), Nursing, Social Work
J. Helen Cross +13 more
wiley +1 more source
The global burden of aortic aneurysm attributable to smoking from 1990 to 2021: Current trends and projections for 2036. [PDF]
Jin X +6 more
europepmc +1 more source

