Results 71 to 80 of about 291,043 (296)

How to talk about dying? The development of an evidence-based model for communication with patients in their last days of life and their family caregivers

PEC Innovation
Objective: To help healthcare professionals (HCP) act with more confidence when communicating about approaching death, we sought to develop a communication model for HCP to facilitate conversations with dying patients and family caregivers (FC) in ...
Sibylle J. Felber, Sofia C. Zambrano, Tommaso Guffi, Felix M. Schmitz, Beate G. Brem, Kai P. Schnabel, Sissel Guttormsen, Steffen Eychmüller   +7 more
doaj   +1 more source

Hospice and Palliative Care - Access for All [PDF]

, 2006
Published to coincide with World Hospice and Palliative Care Day 2006, this report showcases the success stories of how hospice and palliative care has been provided in the most difficult settings.
Rebecca Macnair
core  

Patterns of Postictal Abnormalities in Relation to Status Epilepticus in Adults

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Abnormalities on peri‐ictal diffusion‐weighted magnetic resonance imaging (DWI‐PMAs) are well‐established for patients with status epilepticus (SE), but knowledge on patterns of DWI‐PMAs and their prognostic impact is sparse. Methods This systematic review and individual participant data meta‐analysis included observational studies ...
Andrea Enerstad Bolle, Silvana Sarria‐Estrada, Thomas Bonduelle, Bertram Daniel Dynesen, Manuel Toledo, Zhu Chung Che, Kjell Heuser, Anastasios Chatzikonstantinou, Jérôme Aupy, Udaya Seneviratne, Estevo Santamarina Perez, Christoph Patrick Beier   +11 more
wiley   +1 more source

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinocerebellar ataxia type 3 (SCA3) is a genetically defined ataxia. The Scale for Assessment and Rating of Ataxia (SARA) is a clinician‐reported outcome that measures ataxia severity at a single time point. In its standard application, SARA fails to capture short‐term fluctuations, limiting its sensitivity in trials.
Marcus Grobe‐Einsler, Vivian Maas, Arian Taheri Amin, Jennifer Faber, Tamara Schaprian, Katharina Hill, Matthis Synofzik, Lisa H. Graf, Heike Jacobi, Manuela Lima, Ana F. Ferreira, Bart P. van de Warrenburg, Ilse H. J. Willemse, Dagmar Timmann, Andreas Thieme, Paola Giunti, Hector Garcia‐Moreno, Magda M. Santana, Jeannette Hübener‐Schmid, Elin H. Davies, Thomas Klockgether   +20 more
wiley   +1 more source

Five‐Year Disease Progression in Synuclein Seeding Positive Sporadic Parkinson's Disease

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To provide a comprehensive description of disease progression in synuclein seeding assay (SAA) positive sporadic Parkinson Disease participants, using Neuronal Synuclein Disease integrated biological and functional impairment staging framework.
Paulina Gonzalez‐Latapi, Caroline Gochanour, Seung Ho Choi, Hyunkeun Cho, Chelsea Caspell‐Garcia, Christopher Coffey, Michael Brumm, David‐Erick Lafontant, Yuge Xiao, Thomas Tropea, John Seibyl, Caroline Tanner, Charles S. Venuto, Karl Kieburtz, Lana M. Chahine, Kathleen L. Poston, Andrew Siderowf, Kenneth Marek, Tanya Simuni, The Parkinson's Progression Markers Initiative   +19 more
wiley   +1 more source

Status and influencing factors of caring attitude toward dying patients among oncology nurses in Sichuan

Huli yanjiu, 2019
ObjectiveTo investigate the status and influencing factors of caring attitude toward the dying patients among oncology nurses in Sichuan，so as to provide a reference for developing a hospice education program.MethodsA total of 384 oncology nurses in ...
LUO Xi, JIANG Bin, LIAO Jia, WANG Guorong, LIU Xiaoqin, JIANG Yanhua   +5 more
doaj  

Evaluation of the advance/anticipatory care planning (ACP) facilitators training programme [PDF]

, 2011
This report presents an overview of the findings of the three phases of the study and assesses the degree to which the Facilitator Training Programme and Resource Pack have prepared the cohort of facilitators with the knowledge, skills and tools to ...
Ferguson, R, Harris, Rachel A
core  

Functional and Structural Evidence of Neurofluid Circuit Aberrations in Huntington Disease

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Disrupted neurofluid regulation may contribute to neurodegeneration in Huntington disease (HD). Because neurofluid pathways influence waste clearance, inflammation, and the distribution of central nervous system (CNS)–delivered therapeutics, understanding their dysfunction is increasingly important as targeted treatments emerge.
Kilian Hett, Abigail Dubois, Melanie Leguizamon, Alexander Song, Paula Trujillo, Colin D. McKnight, Ciaran M. Considine, Manus J. Donahue, Daniel O. Claassen   +8 more
wiley   +1 more source

Emotion, empathy and exit: reflections on doing ethnographic qualitative research on sensitive topics [PDF]

, 2008
Within ethnography, observation and participation are interwoven as sociological research practice that involves watching, listening and asking questions about people’s daily lives and experiences, and the meaning they attach to these.
Watts, J. H.
core  

Caveat Emptor:On Time, Death and History in Late Modernity [PDF]

, 2004
This article focuses on 'revivalism' and 'resurrectionism'. While the former is a sociological label for contemporary rituals of dying and death, the latter is a label for contemporary practices of historiographical representation.
Palladino, Paolo
core   +1 more source