Results 1 to 10 of about 352,097 (162)

The Bleeding Disorders Research Collaborative [PDF]

Blood Vessels, Thrombosis & Hemostasis
: The Bleeding Disorders Research Collaborative (BDRC) aims to advance an accessible standard of care and quality of life for all people living with inheritable bleeding disorders.
Leonard A. Valentino, Maria E. Santaella, Michelle L. Witkop, Raymond W. Stanhope, Sammie Valadez, Samantha A. Carlson, Halli Benasutti, Donna DiMichele, Michael Recht   +8 more
doaj   +2 more sources

From Vision to Action: National Bleeding Disorders Foundation’s Roadmap for Achieving Health Equity, Diversity, and Inclusion [PDF]

Health Equity
Background: The National Bleeding Disorders Foundation (NBDF) consistently hears from lived experience experts about daily challenges preventing them from leading their best life and thriving physically, mentally, and emotionally.
Keri L. Norris, Marissa Melton, Karina Lopez, Dawn Rotellini, Leonard A. Valentino   +4 more
doaj   +2 more sources

Gene transfer in hemophilia B: a big step forward

Bleeding, Thrombosis and Vascular Biology, 2023
Not ...
Giancarlo Castaman
doaj   +3 more sources

Psychosocial burden of type 1 and 2 hereditary angioedema: a single-center Canadian cohort study

Allergy, Asthma & Clinical Immunology, 2021
Background Hereditary angioedema (HAE) is a rare but serious disorder associated with a multifaceted burden of illness including a high prevalence of psychiatric symptoms and impaired health-related quality of life (HRQoL).
Julia Hews-Girard, Marilyn Dawn Goodyear
doaj   +1 more source

The feasibility of wireless capsule endoscopy in detecting small intestinal pathology in children under the age of 8 years: a multicentre European study. [PDF]

, 2009
Objective: To systematically evaluate the feasibility and methodology to carry out wireless capsule endoscopy (WCE) in children
Bufler, Philip, Fritscher-Ravens, A., Milla, P., Nuutinen, H., Ruuska, T., Scherbakov, P., Tabbers, M., Thomson, M., Torroni, F.   +8 more
core   +7 more sources

Inhibitors in Patients with Congenital Bleeding Disorders Other Than Hemophilia [PDF]

, 2017
The most worrying complication of replacement therapy for severe hemophilia A and B is currently the occurrence of inhibitory alloantibodies against infused factor VIII and factor IX, respectively.
Franchini, Massimo, Liumbruno, Giancarlo Maria, Marano, Giuseppe, Mengoli, Carlo, Piccinini, Vanessa, Pupella, Simonetta, Vaglio, Stefania   +6 more
core   +1 more source

Patterns of bruising in preschool children with inherited bleeding disorders: a longitudinal study [PDF]

, 2016
Objective The extent that inherited bleeding disorders affect; number, size and location of bruises in young children
Blanchette, Victor, Chalmers, Elizabeth, Collins, Peter, Dunstan, Frank David John, Hamilton, Melinda, Hanley, John, Kemp, Alison Mary, Liesner, Ri, Maguire, Sabine Ann, Nuttall, Diane, Thomas, Angela E.   +10 more
core   +2 more sources

Incorporating the patient voice and patient engagement in GOAL‐Hēm: Advancing patient‐centric hemophilia care

Research and Practice in Thrombosis and Haemostasis, 2022
Background Goal Attainment Scaling for Hemophilia (GOAL‐Hēm) is a novel, hemophilia‐specific, validated patient engagement tool and patient‐reported outcome instrument.
Jonathan C. Roberts, Michael Recht, Sarah E. Gonzales, Justin Stanley, Michael Denne, Jorge Caicedo, Kenneth Rockwood   +6 more
doaj   +1 more source

Preventing perioperative bleeding in patients with inherited bleeding disorders [PDF]

, 2017
Data sources: Cochrane Cystic Fibrosis and Genetic Disorders Group's Coagulopathies Trials Register, a regularly updated database informed by trials identified within electronic databases including MEDLINE.
Beacher, Nicholas, Watterson, Colin
core   +1 more source

Preface [PDF]

, 2006
Reproductive tract bleeding in women is a naturally occurring event during menstruation and childbirth. In women with menorrhagia, however, congenital bleeding disorders historically have been underdiagnosed.
Abdul-Kadir, Rezan, Edlund, Mans, Federici, Augusto B., Halimeh, Susan, James, Andra H., Kamphuisen, Pieter W., Konkle, Barbara A., Kouides, Peter A., Martínez-Perez, Oscar, McLintock, Claire, Peyvandi, Flora, Winikoff, Rochelle   +11 more
core   +1 more source