Results 121 to 130 of about 203,931 (308)

Factor Structure and Psychometric Properties of Cognitive-Behavioral Scales in Caregivers of Persons with Dementia [PDF]

, 2018
Background/Purpose Caregiving can be costly to dementia caregivers\u27 well-being. Assessing the factor structure and psychometric properties of Cognitive-Behavioral Scales in dementia caregivers is an essential step in addressing the gap in the current ...
Bekhet, Abir K., Garnier-Villarreal, Mauricio   +1 more
core   +1 more source

The Diagnosis That Arrived Decades Late: Living Without and Then With Myhre Syndrome

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Myhre syndrome (MIM #139210) is a rare multisystem disorder first described in 1981, characterized by short stature, neurodevelopmental delay, joint contractures, and cardiopulmonary complications. Its molecular basis, recurrent pathogenic variants in SMAD4, was not discovered until 2011. This narrative is based on a review of medical records,
Abdallah F. Elias
wiley   +1 more source

Descriptive Epidemiology From the Myhre Syndrome Foundation Registry: The Value of Self‐Reported Data

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Myhre syndrome is an ultrarare genetic disease characterized by short stature, distinct craniofacial features, cardiovascular and respiratory fibrosis and stenosis, neurodevelopmental delays, autism, intellectual disability, and hearing loss. The natural history of Myhre syndrome is still not fully understood due to a small patient population ...
Mary K. Young, Armelle Pindon, Maggie R. Brand, Kate Wears, Katherine H. Young, Alyssa Mendel, Michael J. Lyons   +6 more
wiley   +1 more source

Caregivers' burden and its influencing factors among parents of children with asthma and comorbidities: a cross-sectional study

Frontiers in Public Health
ObjectiveThis study aims to investigate the current status of caregiver burden among parents of children with asthma comorbidities and to identify its associated factors.MethodsWe conducted a cross-sectional study from May to July 2025, involving 325 ...
Xin Yi, Kejimu Sunzi, Jie Liu, Fang Yang, Xia Wu, Dan Bi, Qin Huang, Lifei Dai   +7 more
doaj   +1 more source

Decreasing Caregiver Stress [PDF]

, 2019
Stress is both critical and personal experience and has significant effects on caregivers’ physical, mental, and social well-being. The nature of caregiving and the responsibility to work and serve individuals at their illness conditions are very ...
Ramos, Dexter
core   +1 more source

Psychiatric Comorbidities and Treatment Modalities in Children With Osteogenesis Imperfecta: A Systematic Review of Mental Health

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT To evaluate the prevalence of psychiatric signs and symptoms and describe psychotherapeutic and psychopharmacological interventions among children with osteogenesis imperfecta (OI). PRISMA guidelines were followed, and the study was registered in PROSPERO (CRD42024588284). Studies (n = 1419) were identified across five databases.
Julia M. Morales, Camille F. Villar, Beatriz Varman, Gianna M. Colombo, Danqi Li, Sarah J. Sadek, Marie‐Eve Robinson, Chaya N. Murali, Kara Ayers, Jocelyn Gomez, Brendan Lee, V. Reid Sutton, Eric A. Storch, Andrew D. Wiese   +13 more
wiley   +1 more source

Tunable Charge Transport Properties Through Precise π‐Stacking Modulation in Isostructural Porous Molecular Conductors

Angewandte Chemie, EarlyView.
An intrinsic structure–property relationship in through‐space conductive MOFs is investigated using a series of counterion‐free porous molecular conductors (PMC‐3) with carrier‐doped π‐stacked columns. The constant carrier density and halide‐dependent tunable π‐stacking geometry in PMC‐3 enable the discovery of a linear correlation between the lattice ...
Liyuan Qu, Hiroaki Iguchi, Kenta Ueno, Shinya Takaishi, Masahiro Yamashita, Chanel F. Leong, Deanna M. D'Alessandro, Takao Tsumuraya, Wakana Matsuda, Shu Seki, Ryotaro Matsuda   +10 more
wiley   +2 more sources

Examining the Role of Agitation and Aggression in Perceived Caregiver Burden [PDF]

, 1995
Recent research efforts in the area of dementia have revealed that the affected patients are not the only people that are impacted by this disorder. There are hidden victims that, more often than not, go unnoticed.
Peterson \u2795, Anthony R.
core   +1 more source

Neurodevelopmental and Psychiatric Studies in Children and Adolescents With Neurofibromatosis Type I: A Comprehensive Scoping Review

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, EarlyView.
ABSTRACT A comprehensive synthesis of the broad range of neurodevelopmental and psychiatric manifestations in NF1 is needed to identify knowledge gaps and future directions for NF1 research. In the following scoping review, we identify and summarize the scope of research that examines neurodevelopmental and psychiatric manifestations, both as ...
Meera Chopra, Tin‐Suet Joan Lee, Jacob Vorstman, Patricia Parkin, Louise Gallagher, Aneta Krakowski   +5 more
wiley   +1 more source

Prevalence of and Risk Factors for Caregiver Burden in Palliative Care in Thailand

Biomedical Sciences and Clinical Medicine
Objective Caregivers are highly important in both conventional and palliative care. Their responsibilities, which include biological, psychological, and social aspects, can lead to stress and other complications.
Chanaphon Ratanasaard, Nida Buawangpong, Kanokporn Pinyopornpanish, Nisachol Dejkriengkraikul, Lalita Chutarattanakul, Thawalrat Ratanasiri, Alicha Chumintrachark   +6 more
doaj   +1 more source