Results 21 to 30 of about 2,569,145 (337)

Robotic and clinical evaluation of upper limb motor performance in patients with Friedreich's Ataxia: an observational study [PDF]

, 2015
Background: Friedreich’s ataxia (FRDA) is the most common hereditary autosomal recessive form of ataxia. In this disease there is early manifestation of gait ataxia, and dysmetria of the arms and legs which causes impairment in daily activities that ...
Bertini, Enrico, Cappa, Paolo, Carniel, Sacha, Castelli, Enrico, Germanotta, Marco, Petrarca, Maurizio, Rossi, Stefano, Vasco, Gessica   +7 more
core   +2 more sources

Does ethnicity, gender or age of physiotherapy students affect performance in the final clinical placements? An exploratory study [PDF]

, 2013
This is the post-print version of the final paper published in Physiotherapy. The published article is available from the link below. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and ...
Annabel Williams, Bithell, Bogg, Clouten, Connor, Hammond, Haskins, Howard, Kell, Mason, Mason, Meriel Norris, Oxlade, Sandra Naylor, Sparkes, Stegers-Jager, Utzman, Utzman, Woolf   +18 more
core   +1 more source

A post pandemic roadmap toward remote assessment for neuromuscular disorders: limitations and opportunities

Orphanet Journal of Rare Diseases, 2022
Recent advances in technology and expanding therapeutic opportunities in neuromuscular disorders has resulted in greater interest in and development of remote assessments.
Jacqueline Montes, Katy J. Eichinger, Amy Pasternak, Cara Yochai, Kristin J. Krosschell   +4 more
doaj   +1 more source

The Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure

Patient Related Outcome Measures, 2023
Meaghan O’Connor,1 Kristen Hsu,2 Lynne Broderick,1 Kristen L McCausland,1 Kaitlin LaGasse,1 Sabrina Rebello,2 Michelle Carty,1 Isabelle Lousada2 1QualityMetric Incorporated LLC, Johnston, RI, USA; 2Amyloidosis Research Consortium, Newton, MA ...
O'Connor M, Hsu K, Broderick L, McCausland KL, LaGasse K, Rebello S, Carty M, Lousada I   +7 more
doaj  

Developing Angelman syndrome-specific clinician-reported and caregiver-reported measures to support holistic, patient-centered drug development

Orphanet Journal of Rare Diseases, 2023
Background Angelman syndrome (AS) is a rare, heterogenous neurogenetic condition, which significantly impacts the lives of people with AS and their families. Valid and reliable measures reporting key symptoms and functional impairments of AS are required
Siobhan Connor-Ahmad, Jorrit Tjeertes, Michael Chladek, Louise Newton, Tara Symonds, Susanne Clinch, Brenda Vincenzi, Fiona McDougall   +7 more
doaj   +1 more source

Expert consensus for respiratory physiotherapy management of mechanically ventilated adults with community-acquired pneumonia: A Delphi study [PDF]

, 2018
Rationale and aims: Patients with community‐acquired pneumonia (CAP) are frequently admitted to an intensive care unit. Physiotherapy may be provided to optimize respiratory function; however, there is significant variability in clinical practice and ...
Braun V, Dennis D, Hodgson C, Hsu CC, McMillan SS, Portney LG   +5 more
core   +2 more sources

Clinical validation of a body-fixed 3D accelerometer and algorithm for activity monitoring in orthopaedic patients

Journal of Orthopaedic Translation, 2017
Background/Objective: Activity is increasingly being recognized as a highly relevant parameter in all areas of healthcare for diagnosis, treatment, or outcome assessment, especially in orthopaedics where the movement apparatus is directly affected ...
Matthijs Lipperts, Simon van Laarhoven, Rachel Senden, Ide Heyligers, Bernd Grimm   +4 more
doaj   +1 more source

Clinical Outcomes Assessment in Clinical Trials to Assess Treatment of Femoroacetabular Impingement: Use of Patient-reported Outcome Measures [PDF]

Journal of the American Academy of Orthopaedic Surgeons, 2013
Patient-reported outcome measures are an important component of outcomes assessment in clinical trials to assess the treatment of femoroacetabular impingement (FAI). This review of disease-specific measures and instruments used to assess the generic quality of life and physical activity levels of patients with FAI found no conclusive evidence to ...
Harris-Hayes, Marcie, McDonough, Christine M, Leunig, Michael, Lee, Cara Beth, Callaghan, John J, Roos, Ewa M.   +5 more
openaire   +3 more sources

Study design for concurrent development, assessment, and implementation of new diagnostic imaging technology [PDF]

, 2002
With current constraints on health care resources and emphasis on value for money, new diagnostic imaging technologies must be assessed and their value demonstrated.
Hunink, M.G.M. (Myriam), Krestin, G.P. (Gabriel)   +1 more
core   +11 more sources

Key measurement concepts and appropriate clinical outcome assessments in pediatric achondroplasia clinical trials

Orphanet Journal of Rare Diseases, 2022
Background This study aimed to identify fit-for-purpose clinical outcome assessments (COAs) to evaluate physical function, as well as social and emotional well-being in clinical trials enrolling a pediatric population with achondroplasia.
Natalie V. J. Aldhouse, Helen Kitchen, Chloe Johnson, Chris Marshall, Hannah Pegram, Sheryl Pease, Sam Collins, Christine L. Baker, Katherine Beaverson, Chandler Crews, Jill Massey, Kathleen W. Wyrwich   +11 more
doaj   +1 more source