Results 41 to 50 of about 29,557 (302)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker   +11 more
wiley   +1 more source

Some Issues of Formation of the Conceptual Apparatus of Social Security Law

open access: yesСибирское юридическое обозрение, 2020
The article analyzes some problems of the formation of the conceptual apparatus of social security law. The authors support the thesis previously expressed in scientific literature about the lack of consistency in the use of certain concepts and ...
M. G. Sedelnikova, A. A. Puzyreva
doaj   +1 more source

First codifications of law [PDF]

open access: yesPravo - teorija i praksa, 2019
Broadly defined, codification is every complete legal regulation of a legal area, regardless of whether it was achieved through one or various legal acts. There were codifications in the ancient history (Hammurabi Code, Code of Justinian), as well as in the medieval period, though feudalism was the epoch of uncodified and particular law.
Dalibor Krstinić, Jovana Vasiljković
openaire   +2 more sources

Serological Benefit of SARS‐CoV‐2 Vaccination Relative to Infection in Children With Acute Lymphoblastic Leukemia

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with acute lymphoblastic leukemia (ALL) are at risk of severe outcomes from SARS‐CoV‐2 (SCV2). In the post‐pandemic context, where most children have been infected with SCV2, there are limited data on whether vaccination remains beneficial in children with ALL.
Janna R. Shapiro   +11 more
wiley   +1 more source

FIKHA GÖRE YASAMA: MECELLE-İ AHKÂM-I ADLİYYE ÖRNEĞİ

open access: yesAnkara Sosyal Bilimler Üniversitesi Hukuk Fakültesi Dergisi
Yasama gücüne sahip olan irade emretme gücüne de sahiptir. Dolayısıyla egemenliği elinde bulundurmaktadır. Yasama yetkisi sayesinde ilk elden bir kanun yapılabilir, mevcut kanunlar değiştirilebilir veya kaldırılabilir.
Mustafa Ünal
doaj   +1 more source

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook   +6 more
wiley   +1 more source

Explicit codification in Pāṇini and generative grammar [PDF]

open access: yes
Generative grammar and Pāṇini’s grammar – so-called Aṣṭādhyāyī, dating from ca. 4th century B.C. – differ in scope and goals: while generative grammarians search for the limits of variation in natural languages to explain what makes language ...
Davide Mocci, Mocci, Davide
core   +1 more source

Increased Risk of Sarcomas in Children With Congenital Anomalies: Findings From the Genetic Overlap Between Anomalies and Cancer in Kids (GOBACK) Registry Linkage Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric sarcomas are a heterogeneous group of tumors that contribute disproportionately to cancer mortality in children. Although congenital anomalies are among the strongest known risk factors for childhood cancer, the risk of specific sarcoma subtypes among affected individuals has not yet been thoroughly evaluated. Procedure We
Russ Wolters   +17 more
wiley   +1 more source

Supporting Survivor‐Centered Care Through Digital Health Integration

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Survivors of childhood cancer face barriers to receiving guideline‐based, long‐term follow‐up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing.
Jordan G. Marchak   +15 more
wiley   +1 more source

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