Results 21 to 30 of about 4,121,353 (304)

A common language for Gulf War Illness (GWI) research studies: GWI common data elements. [PDF]

Life Sci, 2022
The Gulf War Illness programs (GWI) of the United States Department of Veteran Affairs and the Department of Defense Congressionally Directed Medical Research Program collaborated with experts to develop Common Data Elements (CDEs) to standardize and systematically collect, analyze, and share data across the (GWI) research community.A collective ...
Cohen DE, Sullivan KA, McNeil RB, Gulf War Illness Common Data Elements Working Group:, Symptoms Assessment Working Group:, McNeil RB, Ashford W, Bested A, Bunker J, Cheema A, Cohen DE, Cook D, Cournoyer J, Craddock T, Golier J, Hardie A, Helmer D, Lindheimer JB, Lloyd PJ, Kerr K, Krengel M, Nadkarni S, Nugent S, Paris B, Reinhard M, Rumm P, Schneiderman A, Sims KJ, Steele L, Turner M, Systems Assessment Working Group:, Sullivan KA, Abdullah L, Abreu M, Abu-Donia M, Aenlle K, Arocho J, Balbin E, Baraniuk J, Block K, Block M, DeBeer B, Engdahl B, Filipov N, Fletcher MA, Kalasinsky V, Kokkotou E, Lidie K, Little D, Loging W, Morris M, Nathanson L, Nichols MD, Pasinetti G, Shungu D, Waziry P, VanLeeuwen J, Younger J.   +57 more
europepmc   +4 more sources

NIH/NCATS/GRDR® Common Data Elements: A leading force for standardized data collection [PDF]

Contemporary Clinical Trials, 2015
The main goal of the NIH/NCATS GRDR® program is to serve as a central web-based global data repository to integrate de-identified patient clinical data from rare disease registries, and other data sources, in a standardized manner, to be available to researchers for conducting various biomedical studies, including clinical trials and to support ...
Yaffa R, Rubinstein, Pamela, McInnes
openaire   +3 more sources

A community-engaged approach to developing common data elements: a case study from the RADx-UP Long COVID common data elements Task Force. [PDF]

JAMIA Open
Pike Welch HL, Guest G, Garba H, Carrillo GA, Damman AM, Kibbe WA.   +5 more
europepmc   +3 more sources

Linked Exposures Across Databases: an exposure common data elements aggregation framework to facilitate clinical exposure review. [PDF]

Front Public Health
Understanding the health outcomes of military exposures is of critical importance for Veterans, their health care team, and national leaders. Approximately 43% of Veterans report military exposure concerns to their VA providers.
Samuel IBH, Pollin K, Tschida S, Prisco MK, Lu C, Powell A, Mefford J, Lee J, Dupriest T, Forsten R, Ortiz J, Barrett J, Reinhard M, Costanzo M.   +13 more
europepmc   +2 more sources

Enhancing sudden unexpected death in epilepsy (SUDEP) research through development of common data elements. [PDF]

Epilepsia Open
Objective Sudden Unexpected Death in Epilepsy (SUDEP) is a fatal complication for individuals living with epilepsy and is associated with significant personal and public burden.
Iyengar SS, O'Loughlin EK, Harte-Hargrove L, Holmay M, Lubbers LS, CURE Epilepsy SUDEP Data Standardization Project Steering Committee, CURE Epilepsy SUDEP Data Standardization Project Working Group Members.   +6 more
europepmc   +2 more sources

NIDA Clinical Trials Network Common Data Elements Initiative: Advancing Big-Data Addictive-Disorders Research [PDF]

Frontiers in Psychiatry, 2015
The Clinical Trials Network (CTN) of the National Institute on Drug Abuse (NIDA) recently launched a public portal (http://cde.drugabuse.gov) (1), which provides a single-source repository for CTN-recommended common data elements (CDEs) for substance use disorders (SUD) for use in electronic health record systems (EHRs) and clinical research (1, 2).
Ghitza, Udi E., Gore-Langton, Robert E., Lindblad, Robert, Tai, Betty   +3 more
openaire   +4 more sources

No Consensus on Definition Criteria for Stroke Registry Common Data Elements [PDF]

Cerebrovascular Diseases Extra, 2011
<i>Background:</i> Stroke registries contribute to the conduct of clinical research and to the assessment of health care quality control. Efforts to compare clinical outcomes and quality indicators between centers are dependent on standardized data elements, but it is unknown how stroke physicians define common data elements, such as ...
Karen C. Albright, Sheryl Martin-Schild, H. Jeremy Bockholt, George Howard, Andrei Alexandrov, Anne Alexandrov, M. Rick Sline, James C. Grotta, Sean I. Savitz   +8 more
openaire   +4 more sources

Common Data Elements for Meaningful Stroke Documentation in Routine Care and Clinical Research: Retrospective Data Analysis.

JMIR Med Inform, 2021
BackgroundMedical information management for stroke patients is currently a very time-consuming endeavor. There are clear guidelines and procedures to treat patients having acute stroke, but it is not known how well these ...
Berenspöhler S, Minnerup J, Dugas M, Varghese J.   +3 more
europepmc   +2 more sources

Common data elements for criminal legal system involvement for people who use drugs. [PDF]

Harm Reduct J
Ray B, Christopher M, Saavedra LM, Cance J, Seal D, Gicquelais R, Conway C, Illei D, Beletsky L.   +8 more
europepmc   +3 more sources

P121 The development of Core Outcome Sets and Common Data Elements in clinical neurosciences: a scoping review [PDF]

BJS Open, 2021
Bandyopadhyay S, Horsfall H, Chari A, Kolias A.   +3 more
europepmc   +3 more sources