Design and Rationale for Common Data Elements for Clinical Research in Pediatric Critical Care Medicine. [PDF]
Objectives: Common data elements are a combination of a precisely defined question paired with a specified set of responses. Common data elements contribute to the National Institutes of Health–supported principle of Findable, Accessible, Interoperable ...
Ward SL+6 more
europepmc +4 more sources
Common Data Elements, Scalable Data Management Infrastructure, and Analytics Workflows for Large-Scale Neuroimaging Studies [PDF]
Neuroscience studies require considerable bioinformatic support and expertise. Numerous high-dimensional and multimodal datasets must be preprocessed and integrated to create robust and reproducible analysis pipelines.
Rayus Kuplicki+16 more
doaj +3 more sources
Linked Exposures Across Databases: an exposure common data elements aggregation framework to facilitate clinical exposure review [PDF]
Understanding the health outcomes of military exposures is of critical importance for Veterans, their health care team, and national leaders. Approximately 43% of Veterans report military exposure concerns to their VA providers.
Immanuel B. H. Samuel+27 more
doaj +3 more sources
Validation of the National Institute of Neurological Disorders and Stroke Spinal Cord Injury MRI Common Data Elements Instrument. [PDF]
BACKGROUND AND PURPOSE: The National Institute of Neurological Disorders and Stroke common data elements initiative was created to provide a consistent method for recording and reporting observations related to neurologic diseases in clinical trials. The
Fisher J+10 more
europepmc +4 more sources
Clinical Progression of Parkinson's Disease: Insights from the NINDS Common Data Elements. [PDF]
Background/Objective: To synchronize data collection, the National Institute of Neurological Disorders and Stroke (NINDS) recommended Common Data Elements (CDEs) for use in Parkinson’s disease (PD) research. This study delineated the progression patterns
Lewis MM+8 more
europepmc +4 more sources
A common language for Gulf War Illness (GWI) research studies: GWI common data elements [PDF]
The Gulf War Illness programs (GWI) of the United States Department of Veteran Affairs and the Department of Defense Congressionally Directed Medical Research Program collaborated with experts to develop Common Data Elements (CDEs) to standardize and systematically collect, analyze, and share data across the (GWI) research community.A collective ...
Lubov Nathanson+57 more
europepmc +5 more sources
Cerebral palsy pain instruments: Recommended tools for clinical research studies by the National Institute of Neurological Disorders and Stroke Cerebral Palsy Common Data Elements project. [PDF]
This study describes the process of updating the cerebral palsy (CP) common data elements (CDEs), specifically identifying tools that capture the impact of chronic pain on children's functioning.
Schiariti V+8 more
europepmc +2 more sources
Use of Natural Language Processing Algorithms to Identify Common Data Elements in Operative Notes for Knee Arthroplasty. [PDF]
Sagheb E+8 more
europepmc +4 more sources
Common Data Elements Reported in Mechanical Thrombectomy for Acute Ischemic Stroke: A Systematic Review of Active Clinical Trials [PDF]
Background: New trials are planned regularly to provide the highest quality of evidence and invade new occlusion territories, which requires a pre-defined reporting strategy with consistent, common data elements for more straightforward collective ...
Sherief Ghozy+5 more
doaj +2 more sources
Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data. [PDF]
The European Platform on Rare Disease Registration (EU RD Platform) aims to address the fragmentation of European rare disease (RD) patient data, scattered among hundreds of independent and non-coordinating registries, by establishing standards for ...
Kaliyaperumal R+18 more
europepmc +2 more sources