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What makes great data documentation?

International Journal of Population Data Science, 2018
Session topic: What makes great data documentation? Documentation is the tool that describes how and why a database was created, what its strengths and limitations are, and how all of the various components fit together.
Mark Smith, Mahmoud Azimaee
doaj   +1 more source

Documenting Panel Data

, 2016
The key characteristics of panel studies include repeated measures for a more or less stable sample over time. The core challenge in documenting panel studies is the documentation of these repeated measures (usually questions) and the resulting variables because various reasons can require modifications of measures over time - resulting in comparable ...
Hebing, Marcel, Wenzig, Knut
openaire   +1 more source

Clinical Insights Into Hypercalcemia of Malignancy in Childhood

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Hypercalcemia of malignancy (HCM) is a rare but life‐threatening metabolic emergency in children that occurs in less than 1% of pediatric cancer cases, with a reported incidence ranging from 0.4% to 1.0% across different studies. While it is observed in 10%–20% of adult malignancies, pediatric HCM remains relatively uncommon.
Hüseyin Anıl Korkmaz
wiley   +1 more source

Survey data documentation

, 2018
Documentation of research results is an essential process within the research lifecycle, which includes the steps of study planning and developing the survey instruments, data collection and preparation, data analysis, and data archiving. Primary researchers have to ensure that the collected data and all accompanying materials are properly documented ...
Struminskaya, Bella, Gauly, Britta, Daikeler, Jessica, Khorshed, Julia, Jedinger, Alexander   +4 more
openaire   +2 more sources

Survival Outcomes and Complications Among Canadian Children With Retinoblastoma: A Population‐Based Report From CYP‐C

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Retinoblastoma (RB) is the most common pediatric ocular cancer, yet population‐based data on survival and risk factors remain limited. This study aimed to describe survival in a large national RB cohort and identify predictors of death and complications.
Samuel Sassine, Ofélie Trudeau‐Ferrin, Caroline Laverdière, Patrick Hamel, Rosanne Superstein, Bénédicte Koukoui, Carole Provost, Paul C. Nathan, Vijay Ramaswamy, Furqan Shaikh, Brenda Gallie, Ashwin Mallipatna, Stephanie Kletke, Helen Dimaras, Hallie Coltin   +14 more
wiley   +1 more source

VISUAL ANALYSIS OF DOCUMENT TRIAGE DATA [PDF]

Proceedings of the International Conference on Imaging Theory and Applications and International Conference on Information Visualization Theory and Applications, 2011
As part of the information seeking process, a large amount of effort is invested in order to study and understand how information seekers search through documents such that they can assess their relevance. This search and assessment of document relevance, known as document triage, is an important information seeking process, but is not yet well ...
Zhao, Geng, Laramee, Robert S., Buchanan, George R., Loizides, Fernando   +3 more
openaire   +3 more sources

Personalized Selumetinib Dosing in Pediatric Neurofibromatosis Type 1: Insights From a Pilot Therapeutic Drug Monitoring Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate selumetinib exposure using therapeutic drug monitoring (TDM) in pediatric patients with neurofibromatosis type 1 (NF1) and plexiform neurofibromas (PN), assess interpatient pharmacokinetic variability, and explore the relationship between drug exposure, clinical response, and adverse effects.
Janka Kovács, Zoltán Köllő, Balázs Gellért Karvaly, Mahmoud Obeidat, Rita Nagy, Péter Hegyi, Brigitta Teutsch, Eszter Tuboly, Miklós Garami   +8 more
wiley   +1 more source

Evaluating the Utility of Paired Tumor and Germline Targeted DNA Sequencing for Pediatric Oncology Patients: A Single Institution Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate the diagnostic yield and utility of universal paired tumor–normal multigene panel sequencing in newly diagnosed pediatric solid and central nervous system (CNS) tumor patients and to compare the detection of germline pathogenic/likely pathogenic variants (PV/LPVs) against established clinical referral criteria for cancer ...
Natalie Waligorski, Rebecca Ronsley, Shannon M. Stasi, Jeffrey Stevens, Erin R. Rudzinski, Christina M. Lockwood, Sarah E. S. Leary, Bonnie L. Cole, Michelle A. Ting, Vera Paulson   +9 more
wiley   +1 more source

COVID-19 RT-qPCR-based screening in Austrian schools and incidences in the general population: a Bayesian spatiotemporal analysis

Archives of Public Health
In 2021, the emergence of highly transmissible COVID-19 variants of concern increased susceptibility among younger populations. Despite this risk, face-to-face education remained essential for societal functioning and children’s well-being, prompting the
Yessika Adelwin Natalia, Sereina Annik Herzog, Thomas Neyens, Christoph Johann Zurl, Volker Strenger, Geert Molenberghs, Christel Faes   +6 more
doaj   +1 more source

Data journals: incentivizing data access and documentation within the scholarly communication system

Insights: The UKSG Journal, 2020
Data journals provide strong incentives for data creators to verify, document and disseminate their data. They also bring data access and documentation into the mainstream of scholarly communication, rewarding data creators through existing mechanisms of
William H. Walters
doaj   +1 more source